Financial Assistance

financial assistance for lyme patients

Blink Health
“We aim to make prescriptions more available by providing them at the lowest price possible.
www.blinkhealth.com

Bridges to Access
Providing Patients Access to the Medicines They Need
http://www.bridgestoaccess.com/

Clinic of Angels
Click on this link to go to “Clinic of Angels”, a site to get monies, if you are in need.http://www.clinicofangels.org/ and click on the Financial application form on the left of the screen.

ClinicalTrials.gov
ClinicalTrials.gov is a registry and results database of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details. This information should be used in conjunction with advice from health care professionals. Use the search tool, there seem to be a few trials recruiting for Lyme Disease patients.
http://clinicaltrials.gov

Co-Payment Programs
Co-pay programs provide financial assistance for certain health care costs to patients who qualify financially and medically.
Discount for Condensed Cowden Support Program via Nutramedix –
http://www.pparx.org/en/prescription_assistance_programs/co-payment_programs
http://www.nutramedix.com/company.asp
http://www.nutramedix.com/contact-us.asp (phone numbers)

Discount Drug Card Programs
http://www.pparx.org/en/prescription_assistance_programs/discount_cards
A list of many state and other “savings card” programs to help with cost of medications.

Drug Assistance Programs
Click on your state in the map below to learn more about drug assistance programs in your area.

Eligibility for Low-Income Subsidy
This page contains information on eligibility for the Low-Income Subsidy (also called “Extra Help”) available under the Medicare Part D prescription drug program. It includes information on how one becomes eligible for the Low-Income Subsidy as well as useful outreach material.

Filing for Disability
http://lymedisease.org/news/touchedbylyme/ssdi.html

Financial Assistance for Lyme Disease Patients
http://lyme.kaiserpapers.org/financial-assistance.html

Fundraiser Help
Tips and Fundraiser sites you can use.

GSK-Access
http://www.gsk-access.com/index.html (home page)
http://www.gsk-access.com/medicines/medicine-list.html (list of medicines)
GSK Access is a GlaxoSmithKline patient assistance program. It provides GSK prescription medicines—at no charge—to qualified patients who are enrolled in a Medicare Part D Prescription Drug Plan.

Help With Medicine Costs
http://www.needymeds.org/

Lyme Aid
Helps patients with treatment costs.
Click here to join the Lyme Aid Facebook Group

Lyme Aid 4Kids
The LymeAid 4 Kids (LA4K) fund began in 2004 and has helped children all over the U.S. and in Canada. Developed with the help of author Amy Tan, the fund is for children who do not have/receive insurance coverage for Lyme disease treatment for children and have economic difficulties. Donations can be made on-line to LDA help this LA4K fund as there are so many applicants, the fund does run out of money frequently.
Click Here to visit Lyme Aid 4Kids

Lyme Light
Anyone diagnosed with Lyme disease between ages of 3-25 and can demonstrate a qualified financial need.
http://lymelightfoundation.org/

Lyme Tap – The Lyme Test Access Program (Lyme-TAP) is a nationwide patient assistance program to provide assistance for initial Lyme-related lab tests to patients who demonstrate true financial need.
http://www.lymetap.com/

Lyme Warriors
Proceeds fund research, awareness, and impoverished Lyme Warriors. Research funds are granted at every at every available chance. Allocation is decided by a selection process from our team. You can see and get involved in our awareness campaigns under our campaigns link above. Personal grants are selected by an impartial 3rd party.
Click Here to visit Lyme Warriors

Make A Wish
Click on this link to go to “Make a Netwish”, a site to get monies, if you are in need.
http://www.netwish.org/Request_a_Net_Wish.html

Meal Train
http://www.mealtrain.com/learn/what_is_a_meal_train/

Medicaid Prescription Help
The Medicaid prescription drug programs include the management, development, and administration of systems and data collection necessary to operate the Medicaid Drug Rebate program, the Federal Upper Limit calculation for generic drugs, and the Drug Utilization Review program.

Modest Needs
http://www.modestneeds.org/explore/
http://www.modestneeds.org/intro/
Modest Needs offers three main types of grants: Self-Sufficiency Grants, Back-to-Work Grants, and Independent Living Grants. The grants we offer at Modest Needs come with no strings attached and do not ever have to be repaid.

Needy Meds
http://www.needymeds.org/resourcepages/lyme%20disease.htm
This is a Patient Assistance Programs (PAPs). Programs offered by pharmaceutical companies to help those most in need gain access to their medications at no or low cost. Each program has varying financial and insurance guidelines – when in doubt, call the program. To find the specific PAP information for a specific drug click on the list (on web page). You will then be taken to a listing of all the programs available for that medication.
http://www.needymeds.org/free_clinics.taf

Omega
SCHOLARSHIPS AVAILABLE FOR LIVING WELL WITH LYME DISEASE

Partnership for Prescription Assistance
http://www.pparx.org/
The Partnership for Prescription Assistance helps qualifying patients without prescription drug coverage get the medicines they need through the program that is right for them. Many will get their medications free or nearly free. The Partnership for Prescription Assistance will help you find the program that’s right for you, free of charge. Remember,you will never be asked for money by a PPA Call Center representative, or on this Web site.

Patient Advocate Foundation (Co-Pay Relief)
http://www.copays.org/
The Patient Advocate Foundation (PAF) Co-Pay Relief Program (CPR) currently provides direct financial support to insured patients, including Medicare Part D beneficiaries, who must financially and medically qualify to access pharmaceutical co-payment assistance. The program offers personal service to all patients through the use of call counselors; personally guiding patients through the enrollment process.

Prescription Hope
http://www.prescriptionhope.com/
A program helping people get prescriptions at a much lower price. So if you are taking antibiotics, iv’s, etc, they could be a great resource to look into. From their website “We assist individuals who need to take prescription medications, yet lack the income to afford the monthly expense. Since our founding in 2001 we have assisted thousands of uninsured and underinsured individuals throughout the United States in obtaining prescriptions directly from the manufacturer.”

RxAssist
http://www.rxassist.org/
Information about free medications. Find information about free and low cost medicine programs and other ways to manage your medication costs. Patient assistance programs are run by pharmaceutical companies to provide free medications to people who cannot afford to buy their medicine. RxAssist offers a comprehensive database of these patient assistance programs.

Rx Hope
https://www.rxhope.com/
RxHope is exactly what its name implies…a helping hand to people in need in obtaining critical medications that they would normally have trouble affording. We act as your advocate in making the patient assistance program journey easier and faster by supplying vital information and help.

Social Service Connections for Lyme Disease
https://www.facebook.com/groups/648205888600184/?ref=br_rs
A Facebook group that helps those with Lyme Disease and their families connect to government and community resources to enable them to gain formal support systems to better assist their needs.

Ticked Off Foundation
Our mission is to provide financial assistance and support to Lyme and tick-borne disease patients over the age of 25 who are in crisis. We do this through grants and counseling in an effort to stem the tide of Lyme-related suicides.

Wish Upon A Hero
http://www.wishuponahero.com
Wish Upon A Hero is a website that brings together people to help grant wishes big and small. No wish is too large, no hero is too small.

 

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15 thoughts on “Financial Assistance”

  1. I have Lyme disease, only had initial test.I need to have all the testing for coinfections plus treatment. I found a place in Frederick that works with Lyme disease patients,but I can’t afford the tests and treatment. I am on disability and have Medicare, but just like most,insurance is not excepted.I am having worsening neurological and nervous system issues. How can I get financial help, so that I can get the help that I need?

  2. I appreciate these resources. I’ve contacted most of them and only heard back from one, which isn’t currently giving funds at least until next year, and they have a waiting list. I’ve had Lyme for 43 years along with mold illness. Yet no doctor ever mentioned the possibility of Lyme until 2013, even though I spent my first thirty eight years in a known Lyme hotspot near Boston. Mine was one of those cases which was unambiguous once they decided to investigate.

    This could have been addressed decades ago. But I had to wait until six years after it disabled me to find real answers. Unfortunately, by that time I was too deep into a failed SSDI attempt for it to make a difference. Such a horrible state of affairs with the CDC’s positions and the resulting lack of doctor awareness. It’s cost me nearly my life, and placed a huge burden on my family. Now the prospects of ever getting well are seeming less and less possible. I can honestly see why suicide seems like a reasonable alternative to some, as crazy as it sounds. Can you suggest other places to look for assistance? Thanks.

    1. So sorry to hear this Jeff 🙁 I’ve had it for 50 years but only knew it was Lyme until about 3 years ago. I’m hoping to get funds for more extensive tests. I have a home biz with products that are helping me rebuild 13 Body Systems <3 but still not enough usable strength to work like I need 🙁

      If I could just eliminate the Sweats & Vibration I believe I can keep working. I have a website @ staystronginc.com that I'm slowly working on too.

      I pray this past year has brought you some relief.
      O. Darlene Wood

  3. Hi. First of all, thank you for assembling these resources. I don’t begrudge children and adults between the ages of 3-25 assistance with this horrible disease which first affected me over a decade ago, at age 47 +/- although the diagnosis did not happen quickly and member physicians of the IDSA blocked appropriate I.V. antibiotic therapy. Now I do not have enough money to purchase some of the meds I need. Over the course of my life I have paid and generated millions of dollars in tax revenue and as a single adult male have paid more than my fair share into the system. I find it offensie that there is such age discrimination. After paying millions of dollars into the system, now virtually penniless (because I borrowed against EVERYTHING to pay mortgages), despite my financial contributions into the system, I am ineligible for certain benefits because of my age? I can no longer be added to my parents’ insurance plan at minimal cost. The only public subsidy I receive is a break on my monthly premium and while I fully support financial aid for those in need, I do not support age discrimination, whether it be for age groups 3-25 or 55 and older and at least 2 of the programs in this group of resource are ageist. I mean no one any offense but sometimes it gets very old when I see people with 4 kids getting health care subsidies that are paid for by people like me and my peers yet we cannot get access to the same funds because we are too old. And trust me, I skate on the edge of financial ruin and just had to speak up for people of ALL ages. Thank you for having a forum like this and again, I mean no one offense and believe in supporting children wholeheartedly. On the same token I do not believe in denying adults the same consideration when they cannot work and have lost everything, most frighteningly the very real possitility of having to live on the street in old age, Best Regards, Ed Scherer

    1. Ed Scherer,

      have you appled for SSDI, social security DISABILITY insurance, work benefits?

      valuable info here on filing of what we learned the HARD way …

      Bettyg, Minoucat, & Connie Mcs SSDI, SSI, & LTD DISABILITY RECOURCES FOR Disability, Insurance, Dealing with HMOs

      http://flash.lymenet.org/ scripts/ultimatebb.cgi? ubb=get_topic;f=3;t=013935;p=0

      http://tinyurl.com/4ltv9jj

      RESOURCES LINKS; many might be repeated above; others may be NEW to others !!

      FINANCIAL BURDENS; 25-30 PAGES PLUS!

      Suggestions for When You Need Treatment and Funds Are Low plus Financial Burdens post towards bottom; extremely detailed by Melanie Reber

      http://tinyurl.com/4es7942

      PRESCRIPTION HELP + OTHER LINKS HELPING THE NEEDY!

      http://www.mdjunction.com/ forums/lyme-disease-support-forums/tips/2390410-prescription-hope-getting-rx-med-help

      http://www.mdjunction.com/ forums/lyme-disease-support- forums/general-support/1016762-financial-destruction-from-lyme-disease-links-shown#11016762

      FINANCIAL DESTRUCTION FROM LYME LINKS FOR HELP

      http://www.mdjunction.com/forums/lyme-disease-support-forums/tips/11392730-resources-all-kinds-must-go-to-link-to-see-this-all 5.2015

      RESOURCES ALL KINDS; MUST GO TO LINK TO READ THEM ALL; EVERYTHING IMAGINABLE!

      hope this helps ALL who come here reading LISA’S wonderful website that she spends COUNTLESS HOURS on.

      let’s give a SHOUT OUT and THANK YOU to WISC. LISA for ALL she gives to the lyme/co-infection community WORLDWIDE. THANKS LISA XOX

      bettyg, iowa lyme activist
      46.5 yrs. chronic lyme
      35 yrs. MISDIAGNOSED by 40-50 drs.
      UNACCEPTABLE !!

  4. How about people who have been suffering seizures for years, as the morons who control the medical community treat them like lab rats and tell them they are “delussional? How about people who are so debilitated with pain they can barely get out of bed? How about people who are on SSI disability insurance that won’t even pay for proper lyme testing? How about people that are so fed up with all the lies and crap, they just want to commit suicide and get it over with?

    1. I have these days too. Hope you found help. I’m still spinning my wheels trying to raise a mere 6 grand to fix my rv and start a new biz to again be self sufficient. SSI forms are still being filled out. My ‘new’ drs never knew me when I was lucid and had hair. They all but 3 (have 7) say delusional. The 3 that think Lyme, refuse to write it down on paper, yet treat me with Lyme protocol drugs. The rest don’t even want my past 8 years records that show protozoa, MRSA, disk disease, Celulitis, ringworm, red blood cell abnormalities, photos of ticks in my scalp, photo of tick rash from 8 years ago, nueropothy, gerd, blood pressure crazy, body temp low, ect, ect.
      Suicide among Lyme sufferers is skyrocketing. My wish is for you to feel better and not alone. You are in my thoughts and prayers. Hugs

      1. It is so disheartening that people who are older can not get some of the assistance because of theie age. A lyme sufferer is a lyme sufferer, no matter age. My heart goes out to the many who feel there is no hope but please know that putting your trust and hope in the Lord will bring you to a place of peace and true joy- trust me as a lyme sufferer, the joy of the Lord can be your strength! Just talk to Jesus and ask Him into your heart and all will be well-even if your body isn’t. What’s more important is your soul’s wellbeing!! Blessings!

  5. Last i knew nutramedix which was about april 2011 nutramedix said if i was my practitioners only patient on it (and i think the first) they would give me a discount making it come out to about 100 a mo average

  6. What about helping those who have spent all their money to get diagnosis and treated and cannot continue treatment because of funds.

    1. or those like me who don’t have access to funds to get diagnosed – lucky to be alive!
      Lucky to have internet to discover Lyme and detox / extreme diet change and that my pain medication was killing me due to chemical sensitivity
      !

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