Here is a collection of articles, educational materials and other information related to Lyme disease and children. This is a collaborative effort to help the parents of children with Lyme disease, so if you know of any other articles or helpful information or support groups that should be added please contact us or place them in the comments below.
Congenital Lyme Disease
Children Lyme Disease Activists
- 16 Year Old Raises Lyme Disease Awareness with 680km Wilderness Hike
- Dominick Helps Spread Lyme Disease
- Shea- Inspiration for the Double Pinkie Swear
Lyme Disease Symptoms in Children and Teens
- Experiences with OCD
- Febrile Seizures in children in WI caused by Tick Borne Infections?
- How Lyme Disease Might Affect a Child
- Kids And Lyme Disease – How It Affects Their Learning
- Lyme Induced Autism
- Neurological Manifestations of Lyme Disease in Children
- Pediatric Lyme, what everyone needs to know
- The Underdiagnosis of Neuropsychiatric Lyme Disease in Children and Adults
- The Role of Neuropsychological Testing in Children with Lyme Disease (pdf file)
Lyme Disease and Children Articles and News
- 2018 – Transmitted in the womb | Kids battle Lyme disease from birth
- Son Suddenly Gets Strange Rash – When Mom Realizes What’s Happened, She Immediately Rushes to ER
- Finding the right psychotherapist for your child with Lyme disease
- 9 Year OldBoy Gets Rare Infection from a Tick Newspaper Article
- Congenital Lyme
- Kids And Lyme Disease – How It Affects Their Learning
- I Refused to Give Up on My Daughter
- Lyme Disease and Munchausen by proxy syndrome Cases
- Tick-Borne Disease In Children And Adolescents A Medical Illness/ A Multidisciplinary “Cure”
Legislation affecting Children with Lyme Disease
Educational Resources for Parents, Physicians and Schools
- ABC’s of Lyme Disease
- Brochures, Bookmarks and Coloring Books for Kids with Lyme
- DESIGN FOR GOOD: TEACHING TICK-BITE PREVENTION TO SCHOOL CHILDREN
- Education Advocacy for Children with Lyme Disease
- Free & Fun Video & PowerPoints for Kids
- Identifying Lyme In The Schools
- LDA Intro – Lyme in the Schools
- LDA School Inservices
- Lyme Disease: School Days’ Maze
- Lyme Prevention Powerpoint for Kids
- The Role of Neuropsychological Testing in Children with Lyme Disease (pdf file)
Parents & Teens Write about their Own Personal Experiences
- A Mom shares her One Year Old Daughter’s Lyme Story
- Brittany’s Lyme/Babesia Story (from Monsters Inside Me)
- Letter from Lyme Dad
- Part I — Julia’s Story: Teen’s Health Affected in Fight Over Chronic Lyme
- Reflections On Lyme Disease In The Family
- The Lyme Diary, Perspective of a Teen Age Girl
Lyme Disease Support Groups for Children
Facebook Support Group for High School and College Students
Books about Children and Lyme Disease
- Book for Kids with Lyme Disease
- The Adventures of Luna and Dips ( A book to teach children about Lyme Disease)
Lyme Disease Videos with/for Children who have Lyme Disease
- Faces of Lyme, Part 3, Our Children
- Imagine~ A Touching Video
- Tick Patrol: Lyme Disease Education for Kids!
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My daughter has struggled with lyme since birth. She is now 17 years old. After rejection for years in Iowa, she has lost hope in her treatment. I am trying to relocate to San Francisco to find her the encouragement and support she needs. Do you have suggestions? Thank you!