History Of Lyme Disease
1883
The first recorded case of Lyme Disease is described by physician Alfred Buchwald in Breslau, Germany. He described it as a degenerative skin disorder now known as ACA (acrodermatitis chronica atorphicans) with the earmarks of Lyme Disease.
1909
Arvid Afzelius presents his research on expanding ring like lesion (erythema migrans) associated with what would become known as Lyme Disease. In 1909, he presented a paper at the Swedish Society of Dermatology about unique ring-shaped lesions he had observed that he believed to be attributed to tick bites.
1921
Arvid Afzelius publishes his work and speculates on the origin of the disease as the Ixodes Scapularis tick and connects the disease with joint problems.
1922
The disease is found to be associated with neurological problems. Click here
1930
The disease is found to also cause psychiatric problems. Click here
1934
Appearance of EM or ACA is associated with benign lymphocytomas.
Arthritic symptoms are reported in connection with the disease.
Late 1940’s-
America recruits over 2,000 Nazi Scientist like Eric Traub, in a project called “Project Paperclip,” to work on Plum Island with animal viruses and bacteria. (Ironically researchers isolate Bb in ticks collected off Shelter Island and Long Island shortly after Traub’s arrival.
1969
The first case of babesiosis was reported from Nantucket Island, Massachusetts, in 1969. Since the late1980’s, the disease has spread from the islands off the New England coast to the mainland. Cases have also been reported all across the United States, Europe, and Asia.
1960-1980
Tick experiments were being done on Plum Island in conditions that were later deemed unsafe conditions under a scientist named Dr Hess. Dr Hess was fired in 1988 and their experiments closed down. A scientist committee urged the USDA to put together a professional expert team to make it safe.
Dr Garth Nicholson contends that possible Mycoplasma was “let loose” from Plum Island. He says that Mycoplasma is often cross contaminated with Bb. Read more in the book “Lab 257.”
1970
Rudolph Scrimenti, professor of dermatology publishes reports of the rash . The first case of Lyme disease in the U.S. is believed to have occurred in 1970, when Wisconsin physician Rudolph Scrimenti documented his treatment of a hunter who’d been bitten by a tick.
1975
Polly Murray and Lyme Disease
Lyme disease first registered on the public radar in 1975, when Polly Murray, a resident of the coastal town of Lyme, Connecticut, complained to physicians about symptoms that affected her entire family. Believing Murray to be a bit touched, local physicians discounted her claims. However, she persisted, and eventually researchers from Yale University in New Haven delved into her case. They found more than 51 cases in the area of what they initially believed to be pediatric arthritis. In 1977, Yale’s Dr. Allen Steere revised the named to “Lyme arthritis,” and in 1979, again changed the name to Lyme disease.
1975
Allen C. Steere, Yale, investigates a group of rashes and swollen joints in Lyme, Connecticut.
Scrimenti publishes about his treatment of the rash with penicillin.
1976
A clustering of cases of the disease is reported in a Naval Medical Hospital in Connecticut.
1977
Steere et. Al misdiagnoses Lyme Disease as juvenile rheumatoid arthritis and names the condition Lyme Arthritis.
1982
The etiological agent of the disease, Borrelia burgdorferi, is discovered by Dr. Willy Burgdorfer.
1983
Treatment of Lyme disease with oral and intravenous antibiotics begins and clinicians define the three stages of Lyme Disease.
1986
Skeptics denounce the existence of Lyme Disease.
1988
Lyme Disease Foundation (LDF) Founded.
1994
The Association of State and Territorial Public Health Laboratory Directors, under a CDC grant, decided that there should be consistency between labs reporting Lyme disease Western Blots, and that a specific reporting criteria should be established. The consensus committe, chaired by Dr. Michael Osterholm, Ph.D., MN, set nationwide standards for Western Blot reporting. This sounds good, but one could argue they made a bad situation worse. Prior to the hearing, virtually every lab had accepted bands 22, 23, 25, 31, and 34 kDa as specific and significant, and reported them as positive for exposure to Borrelia burgdorferi. Not only are these bands specific for Borrelia species, but they represent all of the major outer surface proteins being used to develop the Lyme vaccines. The committee, without any clear reasoning, disqualified those bands as even being reportable.
1995
Congressman Michael Forbes surprises Plum Island for a visit because he was suspicious of what was going on over there. “Read more in the book, “Lab 257.”
1997
Borrelia burgdorferi genome sequenced by TIGR.
http://microbes.ucsc.edu/cgi-bin/hgGateway?db=borrBurg
1999
Smith Kline Beecham receive FDA approval and place LYMErix vaccine on the market.
Nov 3, 1999
PATIENTS PROTEST ALLEN STEERE, M.D. BEING HONORED AS “ASTUTE CLINICIAN” AT NIH
Lyme disease patients peacefully demonstrated their outrage at the honoring of Allen Steere, M.D. being assigned “astute clinician” status. 35 patients and supporters actively picketed just off the NIH campus to draw attention to this lead physician’s controversial yet predominant guidelines to Lyme disease diagnosis and treatment. Following the demonstration, patients calmly faced Steere at his honorary lecture and encompassed about 1/3 of the estimated 150 in attendance. Many went to a reception afterwards.
2002
LYMErix vaccine removed from market.
CDC’s side http://www.lymepa.org/html/vaccine_pulled_off_the_market.html
LDA meets with EPA. Lymerix Meeting http://www.lymepa.org/html/vaccine_pulled_off_the_market.html
2005
The Scrutiny Ends For Igenex Labs – A Lyme Disease Specialty Lab
IGeneX Labs has recently passed two inspections for its biannual recertification from the State of California. A federal inspector also arrived simultaneously. The inspection was intense, with a focus on the Western Blots. The lab has been fully recertified.”
-Nick Harris, CEO, IGeneX Labs, Statement to the Greater Hartford Lyme Disease Support and Action Group
2006
Antitrust investigation initiated at the end of 2006 by Connecticut Attorney General Richard Blumenthal.
2007
A Letter From Dr Jones: December 18, 2007
2008
A Lyme rally was held by The Canadian Lyme Disease Foundation at Queen’s Park Friday morning. The focus of the rally was patients needing accurate testing. Lyme patients and supporters believe that the illness is grossly underreported, with only 100 cases documented in Canada in 2006, while 20,000 were counted by the Centers for Disease Control in the US for the same time period.
2009
Newtown, CT. Patient groups across Connecticut and the nation were jubilant as the Connecticut Senate passed the Lyme disease doctor protection bill today, 36-0, following its unanimous passage in the Connecticut House of Representatives on April 30, 2009. HB 6200 contains language that will protect CT licensed Lyme treating physicians from prosecution by the State of Connecticut Medical Examining Board solely on the basis of a clinical diagnosis and /or for treatment of long-term Lyme disease. The bill provides the definition for Lyme disease which includes “the presence in a patient of signs and symptoms compatible with acute infection with Borrelia burgdorferi; or with late stage or persistent or chronic infection with Borrelia burgdorferi, or with complications related to such an infection.” It also defines clinical diagnosis as determined by a physician that is based on knowledge obtained through the medical history and physical examination alone, or in conjunction with the testing that provides supportive data for such clinical diagnosis.” In addition, it provides for updating the Lyme disease definition if other strains are found to cause Lyme disease.
2010
Patients rally in front of the White House to protest. This was called the Mayday Rally, Tim Grey who also made the documentary, “Under the Eightball put it together.
2011
A bill calling for official recognition of two types of treatment for Lyme and other tick-borne diseases, sponsored by Texas State Senator Chris Harris R-Arlington)* – a chronic Lyme survivor – was passed by both houses of the Texas legislature on May 26 and sent to the governor.
The bill – SB 1360 – notes that the number of Lyme and related tick-borne diseases has continued to increase in Texas. “However,” says Sen Harris, “many Texas medical practitioners are unfamiliar with the symptoms and treatments. SB 1360 will assist doctors in recognizing these symptoms and treatments through Continued Medical Education courses.”
2011
News reports and certain IDSA drs start admitting the truth about co-infections. Babesiosis and Erlichiosis.
2011
LYME DISEASE RALLY WAS HELD ON PARLIAMENT HILL in Canada – May 6th
2011
“As of 12:01 AM THIS morning June 9, 2011 HB295 the New Hampshire Lyme bill became LAW!! “House Bill 295 seeks to protect physicians’ rights to determine the most appropriate treatment protocol for their patients. New Hampshire residents need HB 295 to safeguard their choice in treatment of Lyme disease. NH doctors are under pressure from the medical community and insurance companies to treat with very limited antibiotic regimen, according to the Infectious Disease Society of America which denies the existence of chronic Lyme disease.” HB295 STATUS: After an 18-month journey, the Lyme Disease bill, HB295, became law at 12:01 a.m. today. In the end, the Governor refused to sign the bill and let the bill become law without his signature. According to the Secretary of State’s Office, the Governor had until June 8 midnight to either sign or veto the bill and notify the Secretary of State’s Office of his intent. No such correspondence was ever received. In the absence of this correspondence, the bill automatically became law without the Governor’s signature.”
2011
Over 80 Lyme patients and family member of those with Lyme stood outside the Boston Conference center to protest the Lyme Disease Guidelines that were written by the IDSA.
For Pictures and Videos Click Here
To see more Boston Protest Pictures Click Here
Dr Hoffman, a lyme dr, is under attack again from the medical board.
January 2012
Lyme patients from around the world plaster the IDSA facebook wall with comments after the IDSA asked the question, “What would you like from our Society in 2012?” See more here Activism Events or IDSA Comments Over 1,500 people responded. Many people’s posts were removed and people were blocked from posting.
May 2012
MAYDAY Lyme Protest~ WASHINGTON, DC Hundreds of chronically ill Lyme disease and associated disease patients gathered in solidarity for Lyme disease guideline reforms. The protest will took place in Lafayette Park at 12:00 noon.
April 13, 2012
Dr Phil Does a show on Lyme Disease with Brooke Landau and LLMD, Dr. Chitra Bhakta.
October 20, 2012
A large group of Lyme patients gathered in front of the San Diego Convention Center for the IDSA’s annual meeting. Their goal was to provoke change and bring attention to the IDSA doctors that the Lyme guidelines need to be changed. To read a lymedisease.org’s recap of the event, Click Here.
May 2013
Worldwide Lyme Protest~ For the first time in history Lyme Patients from around the world all protested on the same weekend. There were participants in over 30 countries and approximately 30 lyme events that took place in the United States. History was made on this day. Over 50 tv interviews and news articles came out of this protest Click Here to See.
Click Here for Worldwide Lyme Protest Pictures
Worldwide Lyme Disease Protest Videos
May 2013
Mayday Lyme Protest~ May of 2013 Lyme patients gathered in Washington DC to try to bring attention to Lyme Disease Awareness. This included a march around the White House and Flash Mob “Die-In” to represent the seriousness of Lyme Disease and how patients are dying.
Click Here for Pictures of Mayday 2013.
October 2013
IDSA Lyme Protest in San Francisco Ca put on by lymedisease.org.
Click Here for more pictures.
May 16-18, 2014
2nd Annual Worldwide Lyme Protest
Several countries banded together to bring attention and recognition to Lyme Disease.
Here are websites that recorded the pictures or stories of the Worldwide Lyme Protests.
Worldwide Lyme Association
www.worldwidelymeassociation.com
US Worldwide Lyme Protest 2014
http://wwldap2014.blogspot.com/
Worldwide Lyme Protest Blogs
http://worldwidelymediseaseprotest.blogspot.com/
May 22 & 23, 2014
The Mayday Project
What: 2 Day Protest Outside the IDSA Headquarters
Where: Arlington, Va
Learn More about the Mayday Project on these posts:
My Personal Experience at Mayday
The Mayday Project
Lyme Patient Die Ins
In 2013 & 2014 Lyme patients started doing Lyme “Die Ins” to show the seroiusness of Lyme disease to passer bys. This eye catching event caught on and has been done at multiple events now.
See More about the “Die In’s” Here
2013 – 2014
Many states start passing bills regarding Lyme, to protect Lyme doctors and to force insurance to cover medical treatment.
http://whatislyme.com/list-of-states-with-lyme-bills-that-have-passed-or-are-in-progress/
September 2014
Passing of Bill HR4701 (September 9, 2014)
Watch Video Here
September 2014
New York Times Lyme Protest
Lyme Activists to Speak Out at New York Times with Silence Against Silence
October 2014
The Mayday Project’s Philadelphia ID Week Protest
When: Saturday, October 10 & 11
Where: Philadelphia Convention on Center The protest is on 13th and Broad
1101 Arch St, Philadelphia, Pennsylvania 19107
October 10, 2014
CANDLELIGHT VIGIL- 6:00PM -9:00PM, Downtown Marriott
October 11, 2014
PROTEST- 8AM – 3PM, Philadelphia Convention Center
See Pictures Here
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