How Lyme Disease Might Affect a Child

 

Lyme Disease is spreading fast across the world. It is in every state and it is on every continent except Antarctica now. Lyme Disease is spread though the bite of a tick and is congenital. If your child is sick and noone can figure out why or you are not satisfied with the answers you have received so far, please read on.

 

Symptoms of Lyme in Kids

Lyme Disease presents in different ways in each person. A child may have only a couple of these symptoms or many of them.

ADHD Hyperactivity Disorder
Arthritis
Autism
Carditis
Cognitive Deficits
Dizziness
Fatigue
Fever
Gastrointestinal
Inability to Pay Attention
Light Sensitivity
Mood Disturbances
Muscle Spasms
Neuro Manifestations
Neuropsychological
Unexplained Pain
Petechiae & Purpura
Rashes
Seizures
Sound Sensitivity
TMJ-Lockjaw
Vision Disturbances

Sources for this information:
http://www.drjoneskids.com/
http://kidshealth.org/parent/infections/skin/lyme.html

Click Here to See How a Child with Lyme Might Behave

Many Times Lyme Can Be Misdiagnosed As These Conditions

It is often hard to determine what is a “condition” and what is a “symptom of a disease.

Possible Misdiagnoses

ADHD (Attention Deficit and Hyperactivity Disorder)
Autism
Mood Disorders or other Psychiatric Conditions
Attention Seeking
Tourette syndrome
Seizure Disorder
Anxiety
Growing Pains
Sensory Integration Disorder
Obsessive Compulsive Disorder
PANDAS
Juvenile Rheumatoid Arthritis
Chronic Sinitus
Allergies
Oppositional Defiant Disorder
Autoimmune Encephalopathy

These answers were taken from a poll in an online Lyme Support Group.

Pediatric Lyme Links

Dr Jones Kids
Dr Jones is a Pediatric Lyme Specialist. His website has a lot of information about Lyme Disease and how it affects children and women who are pregnant.
Lyme Aide for Kids
This website was made by the Lyme Disease Association and provides assistance for kids who are infected with tick borne infections.
Touched by Lyme
An article on families and dealing with Lyme.
Timothy The Tick
The California Dept of Health has several tools to help raise tick awareness for kids. You can download bookmarks, puzzles, coloring books and lots more!
Lyme, Kids & Schools
Get your schools involved in the education of Lyme. The Lyme Disease Association has put together some packets from school.
Neurological Manisfestations of Lyme in Children
Written by Dorothy M. Pietrucha, M.D., P.A.
Pediatric Neurology
Pediatric Lyme by Dr Ann F Corson
A PDF of the signs, symptoms and other information about Lyme Disease.
Lyme and PANDAS
An abstract

Pregnancy and Lyme Disease and other tick borne infections

Pregnancy and Lyme Disease
by John Drulle, M.D. December 1990
Congenital Lyme Disease Syphilis and borreliosis during pregnancy
Research article on the transmission of Lyme and Syphilis during pregancy.
Lyme Disease During Pregnancy
An Abstract by Lauri E. Markowitz, MD; Allen C. Steere, MD; Jorge L. Benach, PhD; John D. Slade, MD; Claire V. Broome, MD
Molecular Evidence of Perinatal Transmission of Bartonella vinsonii subsp. berkhoffii and Bartonella henselae to a Child%u25BF
An Abstract by Edward B. Breitschwerdt1, Ricardo G. Maggi1, Peter Farmer2 and Patricia E. Mascarelli1
Disease Caused By Insect Bites Can Be Transmitted To Children At Birth, NC State Researcher Finds
A North Carolina State University researcher has discovered that bacteria transmitted by fleas-and potentially ticks-can be passed to human babies by the mother, causing chronic infections and raising the possibility of bacterially induced birth defects.

 

To Learn More About These Other Infections Click Here
http://whatislyme.com/co-infections/

Click on this Picture to See Lyme Brochures for Kids

This site has bookmarks, crossword puzzles, worksheets and lots of fun stuff for kids to learn about ticks.

Pediatric Lyme Disease Books

One Mom’s Story on Being a “Lyme Mom”

Prevention is Key

Make sure to teach your kids to do tick checks when they come in from playing outside.

 

If you are your child finds a tick make sure you know how to remove it properly.

 

 

 

 

From Caitlyn

 

My son, Kian, was born 6 weeks premature at 5 lbs, 9 oz. and 18 1/2 inches long. He is our miracle. I went into preterm labor with him at 22 weeks, and had an emergency cerclage placed, saving his life. After he was born, he spent a week in the NICU, with an issue of not being able to breathe and eat at the same time, causing his heart to literally stop. From birth on, when he would cry, or get excited, all around his mouth would turn blue. Doctors told me this was perfectly normal. HOW can something like that be normal?

At six months old, he received his first flu shot. I did not know as much about vaccines then as I do now.. That night and over the next couple of days, he had mini seizures, that I did not recognize as BEING seizures. I took him to the pediatrician because he had a 102 fever. He had a bigger seizure in her office. We were sent 2 hours away to the Children’s Hospital. They would not admit the flu vaccine was the cause, but told me to NEVER let him have another.

He developed normally, in some ways very quickly, he loved listening to classical music with his PopPop and could drum and match the beat of the music by 13 months old. He also rapidly began to talk. About this time, I had my first Lyme flare. Come to find out, stress set it off, it mimicked mono and they talked of cancer, all I knew I felt better when I started Cipro. A few months later, I found I had Late Stage Lyme. Began some treatment.

By 18 months-2 years, he could speak in full, coherent sentences. We still had the issue of the blue mouth. After one attack, I took him to a specialist, who told me he just had a slight murmur, nothing to worry about, his heart was just a little slow. A friend talked me out of testing him for Lyme then. He’d never been bitten, I did not KNOW it could be passed congenitally. So we waited.

After a move to Kansas just before his third birthday, with my husband who is military, I noticed things changing. He became aggressive, wouldn’t hug me anymore, was extremely angry all the time. We thought there were food allergies, we took away the biggest offenders. Better, but not where he should be.. Then I got sick again, after about a year to year and a half of feeling good. I didn’t want to believe it was Lyme again, but SURPRISE! It was. And worse. We found I had Lyme and Company.

On my son’s 4th birthday, the night of his party, he had a little sweet and sour chicken, and woke up at midnight, throwing up, screaming of leg pain, etc. I called his pediatrician, who told me it was probably the stomach flu, he was FINE. I knew better. Switched pediatricians, had tests run, lo and behold he had H Pylori. Treated for that, got his Lyme test back, his bands nearly matched mine perfectly. He is currently on Amoxicillin, but we will be going more in depth when we see our LLDO next. He is a wonderful, sweet boy, and I hate seeing what Lyme has taken from both of us.

 

Ashley

“Another time in the ER… darn lyme. all from one tick!!!!”

 

From Allison

Danny, Jimmy, Kristi, Gabriella and Mike

“My son Danny, the oldest, was diagnosed with Chiari Malformation, joint inflammation, temporary blindness, severe headaches, visionary delays and joint snapping. Doctors wanted to perform brain surgery, for what really turned out to be Lyme and God knows what else. Jimmy, suffers everyday from nasal pressure and swelling, has had several bouts with pneumonia. We have tried everything…he has Lyme and God knows what else. Kristi, suffers from Shingles. She received the Chicken Pox vaccine, but due to her compromised immune system thanks to Lyme, she got Shingles. My other daughter Gabriella, suffers from Lyme and co infections. She has severe digestion problems that put her in the hospital about once or twice a year. My son Mike suffers from OCD, joint and muscle pains, headaches, sleeplessness and attention disorders.

 

Kara and Her Two Children

 

I have had Lyme disease since I was 4 years old but didn’t know it. I have been re-infected with Lyme Disease at least 2 other times before the age of 11. I have lived with constant joint pain, stomach problems, fatigue, anxiety, insomnia, depression, allergies, skin rashes, night terrors, chronic migraines, jaw pain, back pain, neck pain, and a headache that has not gone away since I was 10 years old. Spent my life seeing specialists and they all told my mom that it was all normal child/teenage stuff and that I would outgrow it, but I never did.

Got remarried to a wonderful man and decided to have a baby. We had two back to back miscarriages before getting our sticky baby girl. I was so ill during my pregnancy that I could barely work and just laid on the couch wishing for death. My delivery turned into a nightmare emergency C-section without anesthetic and a shoulder injury that is now permanent. After the birth I became very ill and all my previous symptoms came raging out and hit me like a ton of bricks. My beautiful baby girl ‘J’ came out of this world in great distress and screamed and cried non-stop for the 1st four months of her life and never slept more than an hour or two at a time. Doctors kept telling us she had colic and reflux. I had to stop breastfeeding her after a few months because I was in so much pain and needed to take medications for pain, anxiety & depression. J then developed a rash over her entire body and began to develop allergies to every single food we fed her. All of the doctors were mystified but told us she would outgrow it all. At 6 months she had her first anaphylactic reaction after receiving her well-child boosters.

The daycare called me to pick her up because she had been vomiting and then collapsed. I drove her to the hospital thinking she was dead in her car seat because she wasn’t moving and barely breathing. She did not smile or laugh, she did not roll over, or crawl, or manage a lot of the infant milestones. She finally walked on the day of her 1st birthday but had trouble with her legs and balance. Initially we chalked it up to unsteady baby legs but it slowly progressed to leg weakness and then falling flat on her face. For the next two years she has basically lived in the hospital or clinic for one thing or another; she has had chronic ear infections, eye infection, tubes put in her ears multiple times, tube in her eye duct, severe open and bleeding rasher from everything her skin would come in contact with or from food, insomnia, anxiety, nightmares, chronic constipation, fatigue, inconsolable tantrums multiple times a day, sensitivity to sound, light & touch. She had trouble with gross motor issues (muscle weakness in her legs and arms/hypotonic) and trouble with her physical co-ordination, but was extremely verbal for her age; she was speaking in full sentences by 18months of age. After a very bad fall, where she went headfirst into a bench at the museum, we brought her to a neurologist who told us that he was positive she had minor Cerebral Palsy, and was shocked when her MRI came back clean. By the time J was 2 ½ she had seen over 20 doctors and had been prescribed many different medications, all which she could not tolerate, or made things worse.

By the time J was two I had already been hospitalized three times for psychiatric problems and because I was becoming suicidal and had to quit my job because I was no longer able to function. By this time I had seen over 30 doctors, been on over 40 different medications, numerous therapies, and was told I was losing my mind. I even let them talk me into having ECT treatments because nothing was working and I wasn’t coming back mentally. Shortly after this I accidentally got pregnant with my 2nd daughter. Many people told me to abort her since I could barely take care of my 1st daughter; my parents took care of J 2-3 days a week for the first year of her life I was so sick. I had another rough pregnancy but my psychiatric and physical symptoms faded, or disappeared completely, and I felt the best I had felt in 3 years. My 2nd child saved my life and gave me the strength to keep moving forward with my life. Baby A was also a C-section but it went much better and I felt pretty good until she was about 6 weeks old and all my symptoms came roaring back. By this time I also had memory loss, no short term memory (sometimes even forgetting how to do my work duties), misplaced words, basically my cognitive ability was completely shot.

Baby A seemed healthy by comparison. She was relatively happy, although she also had insomnia and would have screaming rages that I thought were abnormal for someone so small. Her skin was clear and she only developed an allergy to dairy so I was able to breastfeed her for 16months. At 5 months she started developing these mysterious high fevers (103-104) that would last 5-7 days without any other symptoms. These fevers would alternate with abnormally low temperatures (85.6-86.1). The last fever bout, she had, she developed a petechial rash with it and we rushed her to the ER but all of her labs came back normal. By 1 she was also having night terrors, insomnia, sensitivity to touch, constipation, headaches and body pain – she would frequently point to her head or her arms and legs and say ‘owie’.

A few months ago she has started exhibiting some OCDish behaviors, pulling out strands of her hair, hitting herself in the head, or needing to have things just so and going into prolonged rages until it got fixed. For example; having a towel or blanket placed just so across her back and exactly even across both arms – something we would have to do over and over until it felt just right for her to relax. This last month I have noticed the same muscle weakness in one of her legs and a week later she is starting to fall down just like her sister did before starting treatment. J is also having problems with remembering words and stutters trying to say the things she wants to say.

Finally in July, 2012 my children and I were diagnosed with Lyme, Babesia & Bartonella. We started treatment at the end of July and my 3yr old is doing really well so far. She had a back slide for a few weeks and only one major herx but many of her symptoms have improved. Her biggest issues now are chronic stomach pain and constipation, insomnia, muscle weakness, some increasing body pain & nightmares. I am currently taking a break because my liver enzymes are high but I have seen a decrease in my chronic migraines. We are still struggling to get baby A on antibiotics, and struggling to get her up to the full dose of her anti-yeast medication, because it has been so rough on her bowels. For the last four months we have had to keep stopping and restarting and stopping again. Our LLNP has just prescribed a new antibiotic and so we will try it and hope that she will be able to tolerate it. I am getting increasingly worried because A is becoming more and more symptomatic by the week.

 

 





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