How many of you had a mainstream dr (not an llmd) know to test you for any co infections?

online poll by Opinion Stage

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  •  Me!!
    all of mine refused. In fact my old MD who just dismissed me, and told me I would be dead by now if I had babesia
  • The doctor that actually detected my lyme was an orthopedic. Although he diagnosed me, he also told my mom.that there is nothing he can do, and we need to find a good doctor ASAP. So, I’m thankful for him, esp because I grew up seeing doctor after doctor.
  • You can use my name, and none of them did….zero, zilth.
  • I did. The only reason I tested positive for Lyme after 5 tests was because I tested positive for Ehrlichia and I was still very ill after treatment for that, I was bitten 5 months earlier and only received antibiotics from myself getting them where I could unroll I got a diagnosis 5 months later
  • My primary care doctor originally diagnosed me positively with 3 bands of lyme disease. He didn’t bother to test for coinfections, and didn’t even want to prescribe me doxycycline. So much for their hippacratic oath!!
  • Oh. And he was an internist which is what I still see as my primary today and my LLMD is also an internal med dr
  • None. I had to beg for a Lyme test.
  • None
  • Zero
  •  My doctor had no idea!! He thought I was crazy! He said get out of the house, get a part time job. Oh really, I hardly had the energy just to get to his office! Ugh doctors need to be educated!!! When I was given my first blood test to check for lyme it came back cdc positive. I took that plus all my scary labs to my ex doctor. Maybe if someone comes in with my symptoms he’ll think to test for lyme.
  • None, I questioned, implied, coaxed and eventually begged to be tested for lyme but was denied repeatedly and made to feel foolish for asking.
  • My primary doctor refused, totally refused to test me…”you don’t have lymes, Lets try this…”
  • none
  • My endocrinologist tested me for Lyme & co. My PCP had done ELISA test, but that was it.
  • uhhhhhhh…..that’s a big ZERO!!!!!!!! assholes….sry, venting lol
  • None.
  • None
  • 0, they dont even know what they are or herxing or no gluten….the list just goes on.
  • Absolutely NONE! The one just said that it sounds like the symptoms of Bart, so that’s how he treated me.
  •  None and now that I’m getting better and informing them…some are very curious and want to know more others are, “oh, I’ll have to look into that” as they walk away! Grrr!
  • none
  •  0
  • zero
  • zero
  • My primary doctor tested for Lyme first, and later all coinfections. He was the one who suggested testing for Lyme, I had never read on it. I was one of the ignorant few who thought it was rare and quickly treated. He was the one who gave me the boo..
  • Pfft mainstream, what a joke in my life. Mine dx me with fibromyalgia, lupus, Ra, scleroderma, mctd, ddd, and laughed when I brought up Lyme. We don’t have it here u see. And if we did its hard to get and easy to treat
  • none
  • None!
  • Zero
  •  I’ve been tested neg for coinfections but llmd is treating me for babesia and bartonella because of symptoms. Says coinfection tests are even less accurate than lyme test.
  •  0
  •  0
  •  0
  •  One dr said to me, what the hell is that? when I asked him if I should be tested for Bartonella or Babesia.
  • None!!
  • Mine
  • None
  •  Zero
  •  The doctor that my kids and I are seeing now said, ” We need to test everyone for the follow Co-infections: Mycoplasma, CMV, Chlamydia Pneumonia, HHV-6, and EBV. If we test for these and they come back positive, we can treat for everything under these.” Testing for these is more accurate. The treatment for these is the same for Lyme, Bart, Babs…..but covered by insurance!!!
  •  none
  • NONE
  •  One tried, but the Infectious Disease Specialists at the Health region continually cancelled the test requests.
  • none
  •  None!
  • none
  • None
  • None
  •  None.
  •  zero
  • Not me.
  • not me!
  • 0
  • 0
  • I forced them to do that…
  • I learned from researching. We must use our resources to get what we need. The Docs don’t give any additional info. We have to ask for it.
  • None
  • None
  •  none
  • 3 eER MDS 4 RNS A RHEUMY 2 PCP S NOT ONE EVER HEARD OF BABESIA BART NOW THATS SCARY
  • None. They refused to do so, even when I asked. ‘there’s no Babesia in this country’ disbelief when I pointed one of his own patients had lab-confirmed babesia.’ Bartonella is a mild-self limiting illness he said, we mostly see it in AIDS patients’. From an Infectious Diseases consultant. Absolutely no idea….
  • same here Nicola with infec. disease dr got angry whn i asked to b tested for bart claimed i cldnt have it or id be ner dead well i was but anyway he did test reluctantly, swore id show neg. told me make bet id be neg. must knw abt the inconclusive testing lol i do have bart in fact that’s the one coinfection making me very ill




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