How many years did it take you to get diagnosed with Lyme?

How many years did it take you to get diagnosed with Lyme?

online poll by Opinion Stage
These were some of the answers given on a Facebook Poll in a Lyme Support Group
  •  5 years
    Actually I’ll rephrase that…..2.5 years when I was really sick, but was sick off and on for 15 years.
  • 23 + misdiagnosed
  • 2 1/2
  • I was misdiagnosed with MS in 1995, but have been sick off and on before that. Was properly diagnosed in 2007.
  • 24 years – out of the country in the U.S. (I am Canadian).
  • 15 yrs
  • 10
  • I only have a Clinical diagnosis,it took 6 months.
  • Only 1 year and 2 months but misdiagnosed for 10!
  • ten
  • 10
  • 18
  • I have been sick for 40 years but actively had been searching for answers the past 20 years. Finally was diagnosed in 2011. So i guess you could say 20 years.
  •  18 years. Use my name, lol, I don’t care.
  • 18
  • 20 yrs
  • Misdiagnosed for over 20 years.
  • 3
  • At least 16 years
  • 9
  • 6
  • 12 years
  • 22 (bit age 2)
  • 49 years -got it congentially
  • Over 10 years
  • 31 years!
  • 14
  • 36 years…to figure it out myself on the internet before finding an llmd who finally diagnosed me with the three b’s.
  • 30
  • 30 – I’m only counting the adult years, going doctor to doctor. Had issues as a child, too, and I think I may have either been born with it, or got my first dose as a child. Rashes started as a pre teen, and it just so happens, that RMSF was being researched on Long Island from 1971 – 1976. We didn’t move to Florida til 1977.
  • 2 years I knew I was sick and no one would listen to me. I researched the disease and found an LLMD, had positive western blot after several negative Elisa’s
  • I still think I have it…and it has been 6 yrs. so far. But, going to see a Lyme literate Doc. He will get to the bottom of it!
  • I am at least 21, could have been 36. My husband is 38 and our son is 15 and our daughter is 10.
  • Son started kindergarten. Was a senior when correct diagnosed.
  • 12 yrs
  • More than a dozen but could be as many as 30.
  • 24
  •  15
  •  6.
  • I think I had it all my life! I am 53 and have always had health problems but I was still healthy,just stuff like migraines,etc. but I would say the the past 21 years I started going to the Dr. a lot so that’s how long it took,finally I got re-infected 2 1/2 years ago and got severely ill and paralyzed for about 4 hours and I was so sick,I had this rash under my arm and it was very hot and changed in patterns everyday,finally it looked just like a target /bulls eyes and I was laying on couch VERY I’ll for a whole week after tick bite and being re-infected and I was watching world news and Diane Sawyer mention Lyme disease (by the way I suspected I had it in 2009 and Dr. took blood test and said no,he was mainstream too) she mention the symptoms and the rash and I was so sick laying there,I jumped up and said OMG! I KNEW I had it!

  • SO I went back to same doc not knowing there were LLMD doc’s and he took another blood test this time saying it was POSITIVE!Along with co infections I found out I had later from LLMD! I was so mad! So he gave me antibiotics I had allergic reaction that’s when I had to go the natural way,that’s when I found out there were LLMD,that’s when I looked for one and found her! So I wasn’t aware there were Lyme Literate docs and I started to study about it and found a good one close to me that follows DR. Klingheardts protocol,she tested me too and said I was chronic Lyme and had very low CD57 test. There that’s my story LOL Hope it helps ! all in all I would say 21 years it took for me to find out!
    Well, I’m 43 and still have yet to be officially diagnosed by a doctor!
  • First bite in 1965 aged 12, 2nd bite 1985 and third bite 1994… only diagnosed in Feb 2010
  • 10
  • 9yrs
  • It took 3 years of non stop Doctoring and testing for every other disease under the sun. I ended up figuring out what I had on my own and had to find a LLMD who would test and treat my correctly for Lyme and Co’s.
  • I have no idea when I contracted LD. I have hosted many ticks throughout my 70 years of life. I was diagnosed about 18 months ago.
  • 29
  • Well if my doc is correct and I contracted it as a child, about 30 years.
  • 10
  •  same here well just turned 34 and dx 5 yrs ago but the majority of bites “IN THE HUNDREDS” EVERY WKND of my childhood prob 25-50 pulled off my head, twice a wknd as far back as i can remmeber even tho i think i was possibly even born with it- my 1st dx..
    It took 19 years and the last two of them was a non stop doctor visit. I had every DX from fibro to cancer for it all to come down to Lyme. And to boot my parents had the tick tested that bit me when I was 12 yrs old yet they still said it wasn’t after my initial treatment of antibiotics for thirty days. My story could be a book I wish I had fought harder and not believed them cause now I have four children who could have this horrid disease.

Leave your comment down below to how many doctors it took you to get diagnosed. Then click here to leave a comment on the “Lyme and Suicide” article on CNN. Tell CNN your feelings on Lyme Disease and losing our friends to this battle.

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