Isolation and Lyme Poll

 How many of you feel isolated because of Lyme?

Please feel free to add more comments in the comment section below. 
  •   I feel like everyone must. At some pointanyway
  • Me. Even on good days it’s difficult to be out with friends because my former support system of friends no longer exists.
  •  I used to a lot more, but I made changes in who I surrounded myself with and now I don’t feel so alone anymore. The ones who choose to believe I want to have health like this for whatever ungodly reason…I have distanced myself from…and I must say, it feels FABULOUS!
  • I do.
  •  Me!
  •  Isolation is part of Lymes not a matter of feelings in my opinion.
  • Completely….my whole personality has changed due to the isolation and feelings of abandonment from my former “friends”.One of the most difficult aspects of lyme in my opinion.
  • When I was pretty much wheelchair bound I sure did.
  • I do, went through high school with Lyme
  • My daughter feels totally isolated. She no longer has a peer group at school since she has been at home more than at school. She gets stir crazy at home, but has so little energy for doing things outside of home.
  • yes i am
  • Yes
  • Extremely isolated, but much less now with all my fb. Lyme groups! It was desperate isolation before I was dx. Being told this was fibromyalgia and seeing others being able to do so much more than I could with”fibromyalgia”.
  •  understatement. FB saved me from that isolation . .
  • I felt the same exact way as she feels when I was in high school. I was in and out of school as well
  • I feel alone and isolated even with others around…even with all my fb support I feel it most days.
  • This is the most isolated I have ever felt in my life. I have been through an abusive marriage, divorce and tons of other things but Lyme leaves you completely alone. Everyone expects you to wake up one day and just be over it.. To go out in the sun and feel better. And they tell you to be careful not to make “Lyme” your life, when it is your life.. You feel it when you sit down, when you stand up, when you eat, when you sleep and when you DON’T sleep.. Isolated, yes.. and guilty, because they get angry for not “doing enough to just pick your self up”….
  • Very!
  • Oh yes. Goes without saying.
  • I did but to clarify, I was clear it was a choice.
  • Sometimes especially when first hit with it. Had to call one of my hubby’s friends to bring us meals because we were all too sick.
  • i had felt very isolated but then i reached out to many of Facebook’s lyme support groups and found my second family.
  • Me
  • absolutely! people just don’t get it…but my Heavenly Father does and He keeps me sane and functioning
  • i do.
  • Lost my entire family including my two daughters because the first ID dr convinced them I was crazy with negative titre. My ex was a pathologically lying narcissistic bully and has kept my daughters away from stating that if I would just forget the lyme and get the proper psychiatric care they w ould see me. I have only seen my daughters 18 &21 a few times in two years and not for one holiday and didn’t even get to see my youngest graduate hs.
  • I did ! Once I created a FB support group that feeling lessened. People just don’t stick around…..I learned thru talking with Older people ( 70-80s ) that they seem to experience something similar. I am more active now, and I no longer associate with the people who didn’t find me useful.
  • I in no way want this to come across as being a victim. It just is what it is…
  • I do sometimes…
  • Me
  • Sometimes
  • Me
  • since I was a small child… Brought me to God though
  • me and yet I am able to go out and have a social life.
  • I do, I still get the, “well you look fine” treatment from people I never woulda thought would treat me that way
  • I do
  • Definitely isolated by Lyme. If I didn’t have such a wonderful guy in my life, I don’t know what would become of me and my life.
  • Me, me, I do, I do!
  • Yes, I too get the you look fine treatment
  • I have a friend with lyme. she gets around good and still has her job. she said she hasn’t been by to visit me and that she was sorry. she continued;, everytime I look at u, I get afraid that one day I will be as bad as u, so its better for me to just stay away. do I feel isolated. every minute of everyday..
  • Very isolated!
  • It is difficult to make connections when you cannot physically DO things due to fatigue holding you to your bed.
  • All the time. I’ve lost all but my best friend. Though I have gained a great new friend at the Lyme walk
  • I have learned to cherish solitude with my best canine friend
  • ME!!!!!
  • Complete isolation
  • Extremely.
  • Physically isolated because of all the things I can no longer do.
  • Me
  • I want to isolate myself.. Sometimes I want to block everyone out…
  • I do from family but not friends and that is because of facebook. Without facebook and support groups most of us would have no one at all.
  • I did and still do to an extent. I lost so much of my life – my work, friends, church, activities, physical activities. I have yet to recover many of them. It was and is isolating.
  • a bit, mainly by my relatives
  • very isolated.. many friends do not understand. Being in a relationship is even tougher.
  • I feel like I have lost everything except a few friends, and my family. It’s sad when even family members leave us because of this disease.
  • Me
  • Very isolated and alone at times.
  • Yup, very much so…
  • I feel horribly isolated. My family has disowned me, friends don’t understand and fiancé is stressed out.
  • me i had a very active social life pre lyme. always hated being alone low bordom threshold. was used to being in front of crowds of ppl singing at benefits shows down to just not being able to deal with anyone
  •  Totally isolated. If I do socialize, I’m okay with 1 person. Anymore, I’m antisocial. Major neuro communicating and going through the motions.
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