Each day of May for Lyme Awareness Month in 2015, whatislyme.com would like to recognize someone in the Lyme community that has done something to try to help the Lyme community. There are several “unsung heroes” in our community and we would like to just offer them a little recognition and make sure that their achievements and efforts don’t go unnoticed.
Today we would like to recognize Karen Smith.
Where so we start with Karen? She has done so much it’s overwhelming to even think about!
Karen is doing whatever she can to help her country, Australia to learn about Lyme disease and well as other invisible illnesses. Karen has done hundreds of hours of research on Lyme – which can be seen on her website. These days she focus’s on awareness and supporting patients – The Global Lyme and Invisible Illness Organisation was started after a chat between Karen and I, when we both realised that after working on the Worldwide protests together that there was no one place for information or links to support and help around all countries.
Karen’s Australian Websites and Groups
Lyme Australia: Recognition & Awareness (Website)
Lyme Australia Recognition & Awareness (Facebook)
She has also become an avid international advocate.
Karen’s International Groups and Websites
Global Lyme and Invisible Illness Organisation (Website)
Karen’s Story…
Karen has also worked on numerous events and campaigns. Some of which she has held very close to her heart. I would guess the most special and personal event Karen has worked on was Theda’s Memorial Page and Red Shoe Day.
Theda was as personal friend of Karen’s, and she lost Theda, I think it took a part of her heart that she has been trying to rebuild with memories and events to remember her. 
Red shoe day, to be held on July 25th annually is a day to remember all those we have lost to invisible illness such as Lyme, ME/CFS, Fibromyalgia and the many more illnesses that are invisible.
July 25th 2014 marked the first anniversary of Theda’s passing, and the inaugural year of Red Shoe Day: A Day of Remembrance. People were invited to wear their Red Shoes in memory of those who have passed, and to post the picture and your memories to our facebook page “Red Shoe Day – Worldwide Online”
Here are some pictures from the first Annual Red Shoe Day
See More Pictures Here
Red Candle for Theda for her Six Month Rememberance
Theda’s Partner:
“I love you so much and forever my love! xoxoxo”
Lyme patients lit candles around the world for Theda.
A fun idea Karen had…KB.
“Karen started this fun adventure page for KB, her Koala friend to travel around the world and meet chronically ill people and have fun and adventure to report back to his forever home princess Sarah Louise. KB was getting so popular for visits Nurk kindly agreed to come on board and help with his journey this year. “
KB’s Travel Adventure
Location: Bovingdon, England, United Kingdom with Amber.
To Follow KB’s adventures, or request a visit: Join his Facebook Page Here.
Worldwide Lyme Protest Coordinator for Australia
Karen signed Australia up in to participate in the Worldwide campaign, and along with Janice Foster worked to co-ordinate numerous protests and awareness events with many around the country.
Get the Details and See the Pictures Here!
She arranged a number of protests in Australia
Updated 16 hours ago · Taken at NSW Health
Thank you to our roving photographers Kazz Wallace, Danielle Ryan and Ryan Hollings for these pics!
Lyme Lives Here Project 2014
Click on a Country to See Pictures
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Again these are just a small sample of the picures from around the world.
Karen’s latest venture is working with me, Lisa Hilton, on our
Global Lyme and Invisible Illness Organisation site.
The goal of this site is to help make sure that no matter where you are around the world, you will be able to find some kind of Lyme and tick borne disease support. We have collected information on each country, support groups, research, news and working on lots more to come! So stay tuned!
Because Lyme rarely stands alone, we have decided to include invisible illnesses in too.
Stay tuned for July 25th 2015, we have big plans for Red Shoe Day this year!
“This is just the tip of the iceberg of some of Karen’s accomplishments. She is hoping to get back to doing her Phd or to med school” working on research articles to publish and all while being very sick herself. From all the Lyme activism efforts she puts in, to the lighthearted posts about fairies and KB, Karen is just a light in the Lyme community. So let’s give kudos to Karen and tell her how much she means to us in the Lyme community.”
~Lisa Hilton
Feel free to leave a comment letting Karen know how much she means to us below.
Hi Karen. We are here at Armstrong Beach today, Sunday 23rd July 2017. If you would like to get in touch we now live at Jimboomba – unlisted number – hopefully you remember our surname in spite of Lyme disease!
All the best with your efforts. Noreen
Great job Karen! <3
Cool Karen
Karen you are Amazing! And so photogenic! Thank you for all that you’ve done and all that you do 🙂
Thank you Karen for everything you have done and continue to do. You help so many and are fighting for your own health at the same time. You are so special to me and my family. Much love to you, always in my thoughts xo
Wow girl I want to send my sincere thanks to all you do, love the videos and stories and the Kawala bear which I hope to spend time with him here in Minnesota 55722 county highway 40 Menahga Minnesota 56464 and RED SHOE DAY. I love that day in July cause you made it possible for all of us to unite in all the lives lost… I participated gladly lovingly… And will again this year. Love the interviews GOD BLESS YOU
Thank you very much Kory 🙂 I will put you down for KB to visit for sure : no doubt he will love Minnesota 😀 Thank you also for the feedback re Red Shoe Day. I am so glad to hear it meant so much and that you will be joining us again this year – I think it gave many a chance to share the joy and beauty of their loved ones memory as well as join in with the understanding of the lost lives. I know it has become a special event for Lisa and I to co-ordinate. Love n Light <3
Nice work Karen you rock… I is the selfless ones that will help tip the scales and bring change one day.. 🙂
Thank you John – and for all your work in the community also 🙂