This information is what we could find to the best of our knowledge. If you have any pictures or information you would like to share that is missing from this, please Contact Us Here.
1999
PATIENTS PROTEST ALLEN STEERE, M.D. BEING HONORED AS “ASTUTE CLINICIAN” AT NIH
Nov 3, 1999
Coordinators: Could not find out who directly organized this but here’s a page of supporters and contributors. http://www.angelfire.com/or2/lymeprotest/acknowledgements.html
Lyme disease patients peacefully demonstrated their outrage at the honoring of Allen Steere, M.D. being assigned “astute clinician” status. 35 patients and supporters actively picketed just off the NIH campus to draw attention to this lead physician’s controversial yet predominant guidelines to Lyme disease diagnosis and treatment. Following the demonstration, patients calmly faced Steere at his honorary lecture and encompassed about 1/3 of the estimated 150 in attendance. Many went to a reception afterwards.
Click Here for More Information
http://www.angelfire.com/or2/lymeprotest/
Click Here for More Pictures
http://www.angelfire.com/or2/lymeprotest/pics.html
(We believe there were other protests in between 1991 and 2008, if you have any details please Contact Us Here.
2008
Edmonton Protest
July 4, 2008
A Lyme rally was held by The Canadian Lyme Disease Foundation at Queen’s Park Friday morning. The focus of the rally was patients needing accurate testing. Lyme patients and supporters believe that the illness is grossly underreported, with only 100 cases documented in Canada in 2006, while 20,000 were counted by the Centers for Disease Control in the US for the same time period.
2010
Toronto~ Wall of Hope
2011
Canadian Protest
Mayday DC Protest
Patients rally in front of the White House to protest. This was called the Mayday Rally, Tim Grey who also made the documentary, “Under the Eightball put it together.
Video of Lyme Patients getting ready for the protest and then pictures and video of the first Mayday protest.
Boston IDSA Guidelines Protest
October 22nd, 2011
Paul Mall and Lisa Hilton organized this protest which was in front of the IDSA Annual conference. This year it happened to be in Boston, so Lyme patients drove and flew in from around the US to protest and ask for the Lyme Guidelines to be changed. Lyme patients were also asking for recognition that Lyme is a chronic condition. Doctors laughed at patients and stood there taking pictures of them, mocking them. At one point Durland Fisch M.D. came out yelling at Lyme patients saying they were crazy and didn’t know what we were talking about. See picture below.
2012
Lyme Rally in London
May 9th 2012
Read more here
Mayday Part II
May 12th, 2012.
Australia’s First Lyme Disease Protest
14th September 2012
See pictures and interview with Danielle
Facebook Group
Protest in Kléber, Strasbourg
Date : September 15, 2012
A nonviolent protest which aims to denounce the existing denial of chronic Lyme borreliosis will be carried out by Lyme Sans Frontières (Lyme without borders) on Saturday Sept 15 at 1.30pm at place Kléber in Strasbourg.
To learn more please visit these webites:
Association Lyme Sans Frontières
Protest Facebook Group
California’s IDSA Protest by LymeDisease.org
Lyme patients gathered to protest the guildelines written by the IDSA. A truck drove around with signs that said, “The IDSA Rejects Science/Deny Care.”
Read More Here: http://lymedisease.org/news/touchedbylyme/recap-idsa-lyme-disease-protest.html
2013
3rd Annual Mayday DC Protest
Visit The Mayday Project Website
Pictures of the DC Mayday Protest
Video of patients marching around the White House, Doing the “Die In” and Protesting.
1st Annual Worldwide Lyme Protest 2013
On the 24th Of October 2012 three countries Joined Facebook to spread the word about protesting for Lyme Awareness. These were: Sweden, Denmark and Norway.
The Swedish organiser, Charlotte Therese Björnström, saw the need of thousands of people suffering around the world, and had a dream to take the action much further than the Scandinavian borders. From this initial idea, the Worldwide Protest Main Facebook Page was developed on the 31st of October, 2012 in order to connect people from all over the world to see if this dream could be realised.
Here were the results!
- Over 30 countries held rallies, protests and awareness events.
- Several countries held several protests, such as Australia and the US.
- Media attention was finally gained.
- Lyme doctors such as Dr Jones, Researcher Eva Sapi, Author Pam Weintrub, Dr. Daniel J. Cameron, Dr. Kenneth B. Liegner , Gerald T. Simons and many more came to speak at the NYC Rally and other Worldwide Lyme Protest Rallies and Protests.
Click on your country or state to see what happened near you!
Alabama Arkansas Arizona California (Southern) California (Northern) Delaware Florida Georgia Idaho Illinois Indiana Iowa Kansas Kentucky Maine Massachusetts Michigan Montana New Hampshire New Jersey NYC Event New York Albany Event North Carolina Ohio Oregon Pennsylvania South Dakota Texas Utah Virginia Washington Wisconsin
Photo by Chrysa http://mylyme.org/
http://www.worldwidelymeassociation.com/
2014
4th Arlington Mayday Lyme Protest
May 2014
Visit The Mayday Project Website
About 100 Lyme patients showed up from around the country to protest the IDSA guidelines and ask for change and recognition. This protest was highly emotional as it was the first time the IDSA members allowed Lyme patients in to talk to them. Josh Cutler and Allison Hoffman both went in to talk to IDSA representatives while Lyme patients waited outside to hear if change would be coming.
Click Here to see Arlington Protest Pictures
2nd Annual Worldwide Lyme Protest
States that were involved in the WWLDAP 2014
Arkansas Arizona California Colorado Florida Georgia Illinois Indiana Iowa Kansas Maine Maryland Massachusetts Michigan Minnesota Missouri Montana New Jersey New Mexico New Hampshire New York North Carolina North Dakota Ohio Oregon Pennsylvania South Carolina Tennessee Virginia Washington West Virginia Wisconsin
Click Here to See All the State Pictures
Australia Belgium Brazil Canada Czech Republic England Finland France Germany Hungary Iceland Ireland Netherlands Norway Romania South Africa Sweden Switzerland United Kingdom United States
Visit Worldwide Lyme Association to See All Country Pictures
These are just a couple picture from the Worldwide Lyme Protests, to see more please visit:
http://www.worldwidelymeassociation.com/
5th Mayday Philadelphia ID Week Protest
When: Saturday, October 10 & 11
Where: Philadelphia Convention on Center The protest is on 13th and Broad
1101 Arch St, Philadelphia, Pennsylvania 19107
October 10, 2014
CANDLELIGHT VIGIL- 6:00PM -9:00PM, Downtown Marriott
October 11, 2014
PROTEST- 8AM – 3PM, Philadelphia Convention Center
Pictures and Patient Interviews from the Philadelphia Lyme IDWeek Lyme Protest
November 4, 2014
Protest: Patient Emergence~Oregon Health Policy Board Meetings
Coordinator: Deb Elder
Where: OHSU Division of Infectious Diseases
3181 SW Sam Jackson Park Road L457
Portland OR 97239-3098
See More Information and Pictures Here on Oregon Protest
May 2015
The Mayday Project Protest
For the second day, Lyme patients and supporters from around the U.S. gathered in Arlington, VA, at the Infectious Diseases Society of America (IDSA) headquarters, to call attention to the epidemic of chronic Lyme disease and to ask the question: Why does IDSA continue to fight with and vilify patients instead of producing guidelines that would enable those who are chronically ill to receive medically necessary treatment.
August 2015
Chicago Peaceful Demonstration
When:
Tues, Aug 18, 2015 4:00PM – 7:30PM Zoonoses & Vectobourne Infections Dr. S C. , MD MA
Fri, Aug 21, 2015 6:30AM – 1:30PM Joint & Bone Infections RMSF
Dr. A L. M, MD, MPH, FAAP
Jim Berger and Dave Marsh are organized a peaceful demonstration to hand out literature at this year’s PREPID conference in Chicago at Swissotel Upper Wacker. This is the Pediatric Infectious Disease Conference, where Tick Borne Illness and Rocky Mountain Spotted Fever will be discussed.
Jim Berger, Dave March, Laura March, Paul Mall and Lisa Hilton showed up to hand out Lyme brochures and ILADS physician training course manuals that would be sponsored by Lyme Support Network to infectious disease doctors who were passing by. They also handed out Lyme brochures tick removal cards to passersby.
May 2016
Canada
France
- Lyme Protest” à Lourdes
- Lyme Protest” à Alençon
- Lyme Protest” à Grenoble
- Lyme Protest” à Besançon
- Lyme Protest” à Strasbourg
- Lyme Protest Orléans 2016
- Lyme Protest Pontarlier 2016
- Lyme Protest Lille 2016
- Lyme Protest Manosque 2016
- Lyme Protest Limoges 2016
- Lyme Protest Alençon 2016
- Lyme Protest Albi 2016
- Lyme Protest Rodez 2016
- Lyme Protest Rennes 2016
- Grenoble 2016, Journée contre la maladie de lyme
- Lyme Protest Foix 2016
- Lyme Protest Paris 2016
Germany
Hungary
- Hungarian Lyme Even (Protest) will be held on 21th of May in Budapest (our capital): The details will be uploaded continously. The event can be found on their Facebook Page: I. Lyme betegek országos találkozója
London
- UK protest arranged for the 24th May in Parliament Square in London. From 11 am until about 2 pm.
United States
- The Mayday Project 3 Rallies will be held in Washington DC, Arlingtonm VA, and Atlanta Ga.
- Washington Annual Awareness Protest
http://whatislyme.com/history-of-lyme-disease/
Support a Lyme Patient and Order a Lyme Awareness Shirt
This is a great history of the protests and the wonderful people fighting for a cure! Thank you for having this on your website. I will be using many pictures and will use your website as a reference in my presentation in my class.
I have been suffering with Lyme since 1982 having gotten bitten in Door County, Wisconsin and now it is 2017. Took me at least 30 doctors and then I diagnosed myself with a article in Alternative Medicine Magazine and found a LLMD to confirm and get help.
My husband has had Lyme since the 1957 when he got bit while on a bivyak at Ft Leonard Wood in Missouri in the Army and gets no benefits since he wasn’t in during war time. He now suffers from Late Stage Parkonsinism and is unable to be without help. I got his Lyme and Co-Infections when we married in 1992.
We traveled to Colorado Springs, CO to get treated by Dr Martz until he was unable because of his health, and can no longer afford treatment and just are going downhill.
Together we are quite a pair!
Ann & Joe Prow
Pray for Us, please!