Lyme Protests History Timeline

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This information is what we could find to the best of our knowledge. If you have any pictures or information you would like to share that is missing from this, please Contact Us Here.

1999


PATIENTS PROTEST ALLEN STEERE, M.D. BEING HONORED AS “ASTUTE CLINICIAN” AT NIH

Nov 3, 1999

Coordinators: Could not find out who directly organized this but here’s a page of supporters and contributors. http://www.angelfire.com/or2/lymeprotest/acknowledgements.html

Lyme disease patients peacefully demonstrated their outrage at the honoring of Allen Steere, M.D. being assigned “astute clinician” status. 35 patients and supporters actively picketed just off the NIH campus to draw attention to this lead physician’s controversial yet predominant guidelines to Lyme disease diagnosis and treatment. Following the demonstration, patients calmly faced Steere at his honorary lecture and encompassed about 1/3 of the estimated 150 in attendance. Many went to a reception afterwards.

Click Here for More Information
http://www.angelfire.com/or2/lymeprotest/

Click Here for More Pictures
http://www.angelfire.com/or2/lymeprotest/pics.html
protest(We believe there were other protests in between 1991 and 2008, if you have any details please Contact Us Here.

2008

Edmonton Protest
July 4, 2008

July 4, 2008 Lyme Rally-Edmonton Alberta – Edmonton Journal

A Lyme rally was held by The Canadian Lyme Disease Foundation at Queen’s Park Friday morning. The focus of the rally was patients needing accurate testing. Lyme patients and supporters believe that the illness is grossly underreported, with only 100 cases documented in Canada in 2006, while 20,000 were counted by the Centers for Disease Control in the US for the same time period.

July 4, 2008 Lyme Rally-Edmonton Alberta – Edmonton Journal

2010

Toronto~ Wall of Hope

Sept 27, 2010

 

2011

Canadian Protest

On May 6th, 2011 a Lyme Disease rally was held on Parliament Hill in Ottawa, Canada.
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Mayday DC Protest

May 21st, 2011
Click Here for Details and Pictures
Patients rally in front of the White House to protest. This was called the Mayday Rally, Tim Grey who also made the documentary, “Under the Eightball put it together.

Video of Lyme Patients getting ready for the protest and then pictures and video of the first Mayday protest.

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Boston IDSA Guidelines Protest

October 22nd, 2011
Paul Mall and Lisa Hilton organized this protest which was in front of the IDSA Annual conference. This year it happened to be in Boston, so Lyme patients drove and flew in from around the US to protest and ask for the Lyme Guidelines to be changed. Lyme patients were also asking for recognition that Lyme is a chronic condition. Doctors laughed at patients and stood there taking pictures of them, mocking them. At one point Durland Fisch M.D. came out yelling at Lyme patients saying they were crazy and didn’t know what we were talking about. See picture below.

Durland Fisch M.D. yellnig at Timothy Grey and other Lyme patients with his arms up in the air.
Durland Fisch M.D. yellnig at Timothy Grey and other Lyme patients with his arms up in the air. Photo Source: Bryan Clare

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 2012

Lyme Rally in London

May 9th 2012
Read more here

Mayday Part II

May 12th, 2012.

Australia’s First Lyme Disease Protest

14th September 2012
See pictures and interview with Danielle
Facebook Group

Protest in Kléber, Strasbourg

Date : September 15, 2012
A nonviolent protest which aims to denounce the existing denial of chronic Lyme borreliosis will be carried out by Lyme Sans Frontières (Lyme without borders) on Saturday Sept 15 at 1.30pm at place Kléber in Strasbourg.
To learn more please visit these webites:
Association Lyme Sans Frontières
Protest Facebook Group

California’s IDSA Protest by LymeDisease.org

Lyme patients gathered to protest the guildelines written by the IDSA. A truck drove around with signs that said, “The IDSA Rejects Science/Deny Care.”

Read More Here: http://lymedisease.org/news/touchedbylyme/recap-idsa-lyme-disease-protest.html

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Photo Source: LymeDisease.org

2013

3rd Annual Mayday DC Protest

Visit The Mayday Project Website
Pictures of the DC Mayday Protest

Video of patients marching around the White House, Doing the “Die In” and Protesting.

1st Annual Worldwide Lyme Protest 2013

On the 24th Of October 2012 three countries Joined Facebook to spread the word about protesting for Lyme Awareness. These were: Sweden, Denmark and Norway.

The Swedish organiser, Charlotte Therese Björnström, saw the need of thousands of people suffering around the world, and had a dream to take the action much further than the Scandinavian borders. From this initial idea, the Worldwide Protest Main Facebook Page was developed on the 31st of October, 2012 in order to connect people from all over the world to see if this dream could be realised.

Here were the results!

  • Over 30 countries held rallies, protests and awareness events.
  • Several countries held several protests, such as Australia and the US.
  • Media attention was finally gained.
  • Lyme doctors such as Dr Jones, Researcher Eva Sapi, Author Pam Weintrub, Dr. Daniel J. Cameron, Dr. Kenneth B. Liegner , Gerald T. Simons and many more came to speak at the NYC Rally and other Worldwide Lyme Protest Rallies and Protests.

Click on your country or state to see what happened near you!

Alabama  Arkansas Arizona California (Southern) California (Northern) Delaware Florida Georgia Idaho Illinois Indiana Iowa Kansas Kentucky Maine Massachusetts Michigan Montana New Hampshire New Jersey NYC Event New York Albany Event North Carolina Ohio Oregon Pennsylvania South Dakota Texas Utah Virginia Washington Wisconsin

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Greenbay, Wi Worldwide Lyme Protest
Dr Liegner speaking to the crowd about Chronic Lyme disease. Photo Credit: Photo by Chrysa Pikramenos-mylyme.org
Dr Liegner speaking to the crowd about Chronic Lyme disease. Photo Credit: Photo by Chrysa Pikramenos-mylyme.org
Eva Sapi, Lyme Researcher, addressing the crowd of Lyme patients while holding her daughter's hand. Photo by Chrysa http://mylyme.org/
Eva Sapi, Lyme Researcher, addressing the crowd of Lyme patients while holding her daughter’s hand.
Photo by Chrysa http://mylyme.org/
Dr Jones talking to the crowd at the Worldwide NYC Lyme Rally standing by is Dr Kenneth Liegner. Photo by Chrysa http://mylyme.org/
Dr Jones talking to the crowd at the Worldwide NYC Lyme Rally standing by is Dr Kenneth Liegner. Photo by Chrysa http://mylyme.org/
The crowd listens as the doctors and researchers speak about Chronic Lyme disease. Photo Credit: Donna Brunner
The crowd listens as the doctors and researchers speak about Chronic Lyme disease. Photo Credit: Donna Brunner
Photo by Chrysa http://mylyme.org/
Photo by Chrysa http://mylyme.org/
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Photo Credit: Sandi Bohle – Erica from “The Loop” and Yolanda Foster from “Real Housewives of Beverly Hills” gather in front of UCLA Medical center where we were specifically protesting their lack of treating Lyme. Yolanda and Erica both in the picture had tried to get diagnosis there.
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 These are just a couple picture from the Worldwide Lyme Protests, to see more please visit:
http://www.worldwidelymeassociation.com/

2014

4th Arlington Mayday Lyme Protest
May 2014

Visit The Mayday Project Website

About 100 Lyme patients showed up from around the country to protest the IDSA guidelines and ask for change and recognition. This protest was highly emotional as it was the first time the IDSA members allowed Lyme patients in to talk to them. Josh Cutler and Allison Hoffman both went in to talk to IDSA representatives while Lyme patients waited outside to hear if change would be coming.

Click Here to see Arlington Protest Pictures

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 2nd Annual Worldwide Lyme Protest

States that were involved in the WWLDAP 2014

Arkansas  Arizona  California  Colorado  Florida  Georgia  Illinois  Indiana  Iowa  Kansas  Maine  Maryland  Massachusetts  Michigan  Minnesota  Missouri  Montana  New Jersey  New Mexico  New Hampshire  New York  North Carolina  North Dakota  Ohio  Oregon  Pennsylvania  South Carolina  Tennessee  Virginia  Washington  West Virginia  Wisconsin

Click Here to See All the State Pictures

Australia Belgium Brazil Canada Czech Republic  England Finland France Germany Hungary Iceland Ireland Netherlands Norway Romania South Africa Sweden Switzerland United Kingdom United States

Visit Worldwide Lyme Association to See All Country Pictures

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These are just a couple picture from the Worldwide Lyme Protests, to see more please visit:
http://www.worldwidelymeassociation.com/

 

5th  Mayday Philadelphia ID Week Protest

When: Saturday, October 10 & 11
Where: Philadelphia Convention on Center The protest is on 13th and Broad
1101 Arch St, Philadelphia, Pennsylvania 19107

October 10, 2014
CANDLELIGHT VIGIL- 6:00PM -9:00PM, Downtown Marriott
October 11, 2014
PROTEST- 8AM – 3PM, Philadelphia Convention Center

Pictures and Patient Interviews from the Philadelphia Lyme IDWeek Lyme Protest

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November 4, 2014

Protest: Patient Emergence~Oregon Health Policy Board Meetings
Coordinator:  Deb Elder

Where: OHSU Division of Infectious Diseases
3181 SW Sam Jackson Park Road L457
Portland OR 97239-3098

See More Information and Pictures Here on Oregon Protest

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May 2015

The Mayday Project Protest

Watch Livestream Video Here

Press Release

For the second day, Lyme patients and supporters from around the U.S. gathered in Arlington, VA, at the Infectious Diseases Society of America (IDSA) headquarters, to call attention to the epidemic of chronic Lyme disease and to ask the question: Why does IDSA continue to fight with and vilify patients instead of producing guidelines that would enable those who are chronically ill to receive medically necessary treatment.

August 2015

Chicago Peaceful Demonstration

When:
Tues, Aug 18, 2015 4:00PM – 7:30PM Zoonoses & Vectobourne Infections Dr. S C. , MD MA
Fri, Aug 21, 2015 6:30AM – 1:30PM Joint & Bone Infections RMSF
Dr. A L. M, MD, MPH, FAAP

Jim Berger and Dave Marsh are organized a peaceful demonstration to hand out literature at this year’s PREPID conference in Chicago at Swissotel Upper Wacker. This is the Pediatric Infectious Disease Conference, where Tick Borne Illness and Rocky Mountain Spotted Fever will be discussed.

Jim Berger, Dave March, Laura March, Paul Mall and Lisa Hilton showed up to hand out Lyme brochures and ILADS physician training course manuals that would be sponsored by Lyme Support Network to infectious disease doctors who were passing by. They also handed out Lyme brochures tick removal cards to passersby.

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May 2016

Canada

France

Germany

Protests-abroad

Hungary

  • Hungarian Lyme Even (Protest) will be held on 21th of May in Budapest (our capital): The details will be uploaded continously. The event can be found on their Facebook Page: I. Lyme betegek országos találkozója

London

  • UK protest arranged for the 24th May in Parliament Square in London. From 11 am until about 2 pm.

United States

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The Mayday Project Protest Washington DC 2016

 

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