MY STORY By Tom Grier, M.S.

MY STORY
By Tom Grier, M.S.

In 1978 something strange happened to me that I now believe was the harbinger of more ill fortunes to come. In the winter of 1978, I was training for a marathon foot race.

It was being held early in the summer, so I had to train all winter by running on a small sixteenth-mile indoor track.

The running track was deep in the bowels of an old campus building that was built in the late 1800s. It had dim lighting and a funny smell, and was always heated to about 85 degrees.

I was constantly being asked by the track coach to relocate so that the track and field team could train. When Spring approached, I was only too glad to run in the mud and grime of the local woods.

I enjoyed splashing through puddles and traversing streams, celebrating the joy of being young. In an average week, I would run more than 60 miles.

I ran two marathons that summer, and continued to run in the woods through the changing leaves, right up until the snow became impassable.

During this time, I was taking graduate school courses in immulogy and microbiology at the medical school in Duluth.

It was while I was in the microbiology lab that I saw the first of many personal medical conundrums which would follow.

I pricked my finger and placed a drop of my blood on a slide. I did a routine blood smear which allowed me to do a white blood cell count and a differential ratio of the various cell types. I was shocked when I found I had 7% eosinophils. A normal count would be 1%.

In a patient with extreme allergies 3-4 % would be normal, but 7% was quite high. I had an instructor repeat the smear, and she found it to be even higher.

There were some discussions of a rare fatal blood disorder, perhaps a parasitic disease, but we all opted for the more conservative explanation of allergies.

Even though I hadn’t had so much as a sniffle or sneeze all year, we all concluded that my spring time allergies were kicking in. We also ignored the fact that my neutrophil count was down, and my overall WBC count was low.

A week later I got shingles on one side of my body. Why? I was in the best shape of my life.

I only had a mild fever and a mild case of shingles, but why did I get an outbreak of herpes zoster at age 24? Normally, shingles is a condition elderly people get when their immune systems are compromised.

About this time I also had a case of nonspecific urethritis; a burning sensation when I urinated. I was treated with two weeks of tetracycline and it went away, and so did my Shingles.

I really gave very little thought to these events, and it was only years later that I would learn of a disease called Human Granulocytic Ehrlichiosis (HGE), which I now believe I had contracted from a tick bite I received during all the training I was doing in the woods.

What I didn’t know then was that I probably had a second tick-borne disease that would not even be isolated for another three years – Lyme Disease!

I had always been able to function on just a few hours sleep, but by 1980 I was sleeping a lot, and when I was awake I was tired, depressed, fatigued, and constantly distracted.

It seemed I could not get myself to concentrate on any one project for long. I had transferred graduate schools, to the University of Washington.

There, I lived in a cabin in the woods where I had to chop my own wood for heat. The cool, humid weather was perfect for ticks, and I was bitten many times.

In 1980, tick-borne diseases in America were an anomaly, so I never gave a thought that I could have ever contracted anything serious from a tick bite.

Even if I did, the symptoms would certainly manifest themselves within a few days of the bite, so tick-borne diseases never entered my thinking.

I spent a summer camping all through Europe, and once again the concern of tick bites never entered my thinking.

The doctoral program in Geriatrics I had enrolled in was unexpectedly moved from the College of Biological Sciences to the College of Sociology.

I quit school and went to work, with the idea I would go back to graduate school the following fall.

I eventually found myself in the pharmaceutical business as a salesman.

During the next decade, thoughts of school faded as I continued to suffer from unexplained depression and fatigue.

I started to gain weight, and had what felt like a continual hangover that lasted from the time I awoke until I slept. When I did sleep, it was a tortured sleep where I would toss and turn and tear at my covers. I despised warmth and craved cold. My bed in the morning would look like a war zone.

Needless to say, my personal relationships were suffering. It was now 1984.

I had moved back to Duluth, Minnesota, and I continued to experience an ever increasing array of symptoms. I now regularly had sharp shooting pains in my chest that felt like ice picks.

I had heart palpitations; my es were sensitive to bright lights; I had manic mood swings, where I would be awake all night reading or playing piano. This was usually followed by weeks of wanting to do nothing but stay in bed.

Yet, all through these years I always had one faculty I could depend upon, and that was my brain. If I read something I knew it. I remembered it, and I could quote it almost word for word.

During one of my manic episodes, it was nothing to read an entire book or two in a single afternoon. I was a walking encyclopedia of knowledge, but I was still unable to pick up on what was wrong with me.

Then, around Thanksgiving of 1990, I had an episode I could not ignore. By this time I was severely obese. I was tired all of the time, and I now had to put all my efforts into my job just to keep up. I was the top salesman in the country, and yet I could not find the time to answer my own mail.

I was using all my weekends and all of my vacation time to just to keep up. I kept thinking that I was going through a bad patch and things would go back to normal.

I would lose some weight and things would be fine. I’d catch up on work and start to enjoy my prosperity.

As a top salesman, I was now being sent all over the country to sales conventions to help promote our drugs, and to give training seminars to fellow salesmen.

I was even asked if I wanted to become a trainer. A few years earlier this would have been a wonderful perk and a great honor, but now it was torture.

I went to New Orleans, Las Vegas, Orlando, New York, Colorado Springs, Philadelphia, Cleveland, and Chicago. Each and every time it was torture. I wanted to get through the day as quickly as possible, so I could go to bed and sleep.

I skipped cocktail parties; I skipped awards banquets; I even skipped important dinners with company executives – all so that I could just get those extra few hours of sleep I would need to get me through the next day.

At national sales conferences, while three thousand of my fellow employees were at dinner and seminars, I would sneak back to my hotel room and sleep.

Still, I was considered the top salesman in the region overall, and top in the country for our two newest products. I felt like a complete fraud.

While returning from a regional sales conference, I got lost and confused while changing planes in the Chicago Airport. I was sitting at the wrong gate for an hour, waiting for my plane to be called. Everything around me looked strange.

The people sounded like cackling geese. Everyone looked like they were in fast motion, like someone had sped up the projector. Every time I turned, I was dizzy and disoriented. I was sweating, and completely lost.

I had to get to a completely different end of the terminal. Because of the metal in my suspenders, when I went through the metal detectors I set them off.

Here was a sweating, nervous, completely disoriented man trying desperately to get to his connecting flight, talking what was must have sounded like gibberish to the security guards, about a flight that had left more than an hour earlier.

I was finally personally escorted to a sales agent, and had to spend the next several hours trying to collect my wits.

The following week, I had bouts of disorientation that would come and go. My heart palpitations were getting worse.

That summer, I thought a camping trip in the Wisconsin Dells would give me some rest and perspective. I returned to work even worse than before and farther behind. By the time Thanksgiving arrived in 1990, I was only going through the motions of working at all.

I now had severe joint pain in my ankles; I had an unmistakable pressure building up in my head; I was getting lost driving to places that I had been to hundreds of times.

I went to the doctor many times, and each time it was some vague “…lets wait and see?” kind of attitude.

I was now sleeping almost 18 hours a day, and sweating so profusely that I often soaked through my sheets and into the mattress.

During this time, I was the head of our local Pharmaceutical Salesman Association, and I had to debate a panel of doctors on the topic of what benefit pharmaceutical salesmen served the medical community. It was a hostile debate on the doctor’s turf.

I wasn’t worried though, because I slept up to about an hour before, debated for two hours, and went home and slept another 12 hours straight. The few hours that I spent awake were now like hazy dreams to me. Sleep was my only refuge. I now cared about nothing else.

In March of 1991, I was diagnosed with chronic atrial fibrillation. This was the first solid diagnosis I had received in the past year.

My doctor investigated low blood sugar, high blood sugar, Wolf-Parkinson-White Syndrome, Sick Sinus Syndrome, Menier’s Syndrome, Sinus Infection, anxiety panic attacks, viral encephalitis, meningitis and finally, Multiple Sclerosis.

By April of 1991, I now had a constant severe pressure in my head. When I turned my head, the pressure would migrate from the top of my head to the back of my head.

My vision was now reduced to a circle directly in front of my eyes, and my peripheral vision was just a blurry swirling mess of lights and images.

When I would move my head, there was a disturbing gurgle as I heard bubbles move around inside my head.

I found myself for hours in a trance like state almost catatonic, and severe body jerks would awaken me. These jerks were so severe that I had to catch myself to keep from falling.

Then, one day I did fall. Everything was a blurry mess. was in the middle of the street floundering in front of oncoming traffic.

I checked myself in at the local hospital where I was being worked up for Multiple Sclerosis.

While I was in the hospital, my family doctor went on vacation and the neurologist on duty took over my MS work up. As she walked into my room for the very first time, she picked up my chart and immediately asked what the results of my Lyme tests were?

I told her in slurred speech that no one had ever mentioned Lyme disease. She said, “Well, we’ll complete the MS work up, but it will all come back negative.”

Negative? Why? “Because you have classic late stage Lyme.”

Even before I had a scheduled spinal tap and MRI, she had ordered IV Rocephin.

What was it she saw in my chart that in but a few minutes she could diagnose Lyme Disease? Had not others read my chart and investigated my case for nearly a year?

Where a team of specialists could only reluctantly come up with MS after nearly a year of tests, this neurologist was confident in five minutes that I had Lyme disease?

I felt relieved that I had a treatable disease, but I was angry that it was not recognized earlier! Had I not given my doctors everything they needed to make the diagnosis?

Did I not patiently submit to tens of thousands of dollars of tests? Did my doctors not have every marvel of medical science at their beckon call?

Did I not agree to go to half a dozen different specialist so that they could work as a team to diagnose me? What had I done wrong that allowed them to miss a simple diagnosis of Lyme disease?

The answer was evident when my family doctor came back three days later and visited me at my bedside in the hospital. The first thing he said almost apologetically was “Who’d of ever thought it would be a Zebra Disease like Lyme?”.

A Zebra Disease! Meaning it was as unlikely to find a Zebra in the local woods as it would be to find Lyme disease.

After all, you don’t look for malaria in Alaska, and apparently my doctor didn’t look for Lyme in Minnesota!

Yet, by 1991, hadn’t Lyme become an established local pathogen? Surely a newly discovered tick-borne disease would cause doctors to learn all they could about this disease.

This was my assumption, but it would be almost a year later when certain pieces of this puzzle would start to fit together.

I was too sick to do anything now except concentrate on getting better.

I was told in a matter-of-fact manner that all Lyme was easily treated in 21 days, and that I would soon be back to work. Twenty one days later, I was sicker than before treatment.

Every muscle in my body twitched and pulsated, and the pressure in my head was far worse. I could only sit up in bed for a few minutes before the pressure got worse, and I would pass out.

I was hallucinating both visually and auditory. I heard phones ring when there were none. I saw shadows twist into menacing shapes. I heard voices talking.

At night, I saw flashing lights fill my vision, and my ears were constantly buzzing with static and ringing.

I felt for the first time that I may be truly going mad. I had to sleep with headphones on, playing classical music to drown out the noise in my own head.

To make matters worse, my Neurologist who had been so sure about Lyme disease, now seemed completely unsure.

She wanted to stop my antibiotic treatment because I wasn’t “cured” yet. In fact, in many ways I was worse.

“What about herxheimer reactions?”, I said. “Those only last a few days”, she replied.

I had to fight for treatment every single week. My heart was worse; my brain was shot; my mind was a hopeless jumble of uncontrolled thoughts – images and sounds that haunted me.

It was as if several minds had been merged into one, and there was no way to sort the images.

During this time, I lost my disability status and was now without a job, living on my savings.

It seemed that my whole life was out of control, yet doctors had no empathy because, despite it all, my verbal skills were quite good.

The skill by which I earned a living was now my enemy. Every word I articulated expressed a cogent, coherent, lucid individual.

I thought that, by clearly expressing my symptoms in a rational manner, I would give doctors some scientific insight to this disease. I was wrong!

I learned something that, in all of the years I had called on doctors as a salesmen, I had failed to observe.

Most doctors have almost no scientific curiosities about new diseases, and always want the short story, one paragraph or less.

How do Iiagnose it? How do I treat it? Anything that isn’t black and white in medicine is dangerous territory, as far as the doctor is concerned.

I was alive, I could walk, I could talk. “So”, the doctors asked, ” What’s the problem?”

Doctors I had called on for ten years were now distancing themselves from me, because I was a threat to their paradigm of thinking about Lyme. I was pointing out things about Lyme disease that they had never known. I had read several hundred journal articles, and I thought sharing this knowledge would be met with open arms.

I soon realized that I was a threat to doctors because where they had made one mistake, they had probably made hundreds.

Ignorance was not only bliss; it was safer. The maxim of the new medical community was:

Unknown conditions were medical-legal time bombs best left to other doctors to defuse. My journey had brought me to an unsavory conclusion.

Some of the same people I went to school with – the same people I taught as a graduate student – were playing it safe.

They were in essence cowards, unwilling to risk a shred of security to advance their knowledge of a disease that was threatening the lives of their patients.

There was safety in numbers, and until their peers were treating Lyme dease aggressively, they were not about to be the lone maverick.

When hundreds of Lyme patients in a community all started complaining of the same persisting symptoms post-antibiotic treatment, eventually the lower ranks of doctors started reporting this to the infectious disease specialists.

The infectious disease specialists responded by saying persistent symptoms were post-Lyme Syndrome, or psychosomatic disorder. The family practitioners were placated.

If the Infectious disease doctors weren’t worried, why should they do anything different?

Then, more Lyme patients came forward, and the infectious disease experts were placed in an adversarial position.

They had ignored the dozens of studies and case histories showing culture positive patients post-treatment.

They are now in a position of either admitting they are wrong, and chronic relapsing seronegative Lyme Disease really does exist, or they can talk in vague generalities, always falling back on the old dogma:

All infected patients are antibody positive.

This is the medical loop hole that allows them to pass on treang complicated patients, and skirt all controversy. ” We tested them; they were negative; end of story. Go away!”

But ask yourselves this:

Currently, there is a 4.2 million-dollar NIH study to investigate the cause of Chronic Relapsing Lyme Disease.

Much of this study’s conclusion will be dependent upon using antibody serologies for determining diagnosis and relapse.

If there is even one single study or accepted case history that proves a seronegative patient can still be culture positive for Borrelia burgdorferi, then isn’t the entire basis of using any antibody serologies flawed?

If the study is flawed in the beginning, the entire conclusion will be baseless.

This is exactly how we got off on the wrong foot in the beginning. We depended upon serologies to indicate the endpoint and cure.

We didn’t know better then, but we should certainly know better now! So what’s going on? Is it denial? A cover-up? Ignorance? Arrogance? The inability for egos to yield to the truth?

“There are none so blind, as those who will not see.” I think it is a combination of all of these things.

What keeps me devoted to bringing Lyme Disease research to the attention of doctors isn’t just the daily reminder of my own symptoms, but something that occurred to an acquaintance of mine.

At the same time I was tentatively diagnosed with MS, I was told about a pharmacist I used to call on who was diagnosed with what I was told was myasthenia gravis. It was a year later when I learned it wasn’t MG he was diagnosed with, but MS. I promptly went over to see him at his house, and I was shocked at what I had seen.

What once was a strapping 250-pound outdoors man was now a shriveled 100 pound invalid. He couldn’t walk; he could only use one arm; saliva dripped from his mouth and his speech was almost indiscernible.

I did a symptom check list, only to find that he had several tick bites, a history of rashes, and over half of the Lyme symptoms on Burrascano’s symptom checklist.

Since his doctor, a man I had known for more than ten years, was clearly not informed about Lyme Disease, the family asked him to consult with a Lyme specialist – a young family practice doctor that was barely out of her residency.

The elder physician went to the patient’s house, and at the families request took several blood and urine samples, as well as cerebrospinal fluid, which were all to be sent to Mayo clinic, Igenix labs, and Marshfield Clinic for analysis.

In the meantime, the patient was placed on 500 mg. amoxicillin three times a day. He immediately burst into fever and sweats, and had difficulty swallowing.

Although the family doctor was informed that this was a favorable and predictable Herxheimer reaction, the medication was stopped. While waiting for the results of the tests, the patient died of respiratory collapse.

When the results never came, I went to the clinic lab director; a person I knew for years from working with her on the John Bear Grease Dog Sled Race. Renee’ told me that all t samples were destroyed the same day they were collected.

The doctor told her “…we don’t send tests out of house.” This meant that there was never any intention to find the truth about the patient’s true condition.

What the physician didn’t know was that the family had kept several of the urine samples in the freezer.

Upon learning what the doctor had done, they authorized the Lyme specialist to send a sample in for analysis. It was determined there were particles of Borrelia burgdorferi in the urine.

The particles were at such a high concentration that it was one of the highest positives ever seen.

The remaining samples are still frozen, but the family has no interest in pursuing malpractice or medical negligence against a family friend.

To me, it was a premeditated act on the physician’s part to cover up the fact that he had misdiagnosed a treatable disease.

Perhaps he felt it was a waste of time to even do the tests, but he indicated to the family that the samples would be drawn and sent to the various labs as requested.

Yet, within minutes of returning to his clinic, he had the lab manager destroy all of the samples!

It now became apparent to me that, not only did most doctors not know much about Lyme disease, they didn’t want to know!

Many other things also became apparent to me, but the biggest revelation, was that doctors were unwilling or unable to say: “I was wrong, I made a mistake.”

Either it was their egos unable to humble themselves, or it was a fear of medical malpractice that could end their career.

In either case, they were ignorant of Lyme disease and had put too much faith in tests, and not enough faith in their patients.

Since then, I have seen and heard many tragic Lyme disease stories – some of them ending in wheel chairs, and still others in death.

The line in the sand that now divides the Lyme-aware from those who treat Lyme like a strep throat, is now so deep it is a chasm that I fear has become too large to build a bridge across.

I am now convinced that it will take a public statement by the AMA and NIH to overcome the fear that doctors have for treating Lyme disease aggressively.

There will have to be a national paradigm shift for doctors to feel safe in treating chronic relapsing Lyme disease without the fear that their own peers are questioning what they are doing.

We must also legislate to eliminate third party provider’s influence, such as HMO groups that pay a bonus to groups of physicians for holding down medical costs.

This makes the doctors police their own peers in order to receive large bonuses.

We need to eliminate insurance companies from being able to influence physician treatment decisions.

Even now, Blue Cross of Minnesota is challenging a law which states that only the doctor, and not the insurance provider, can decide on the length of treatment.

Their challenge is:

The patient is seronegative, and therefore cannot have an active infection, so they won’t pay for IV Rocephin.

Yet they are willing to pay for less expensive oral antibiotics.

Is it really a belief she is not actively infected, or is it actually a cost containment policy? All patients want is access to treatment!

The argument that antibiotics are overused and cause super infections is also flawed logic. [b]It was underuse of antibiotics that caused antibiotic resistant forms of tuberculosis to evolve.

The director of the CDC during the sixties was recently quoted in Discover Magazine as saying:

“We didn’t know we had a slow dividing bacteria that could hide in the body and sequester itself away from antibiotic treatment. If we knew then what we know now, we would have blasted tuberculosis with whatever it took to eradicate the infection off the surface of the earth.

If we ever see those conditions again we will be ready!” Will we?





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13 thoughts on “MY STORY By Tom Grier, M.S.”

  1. I can’t read the stories, they’re all variations on the same theme. I was also a sales rep for the number 1 company when i hired in. I got sick in 86. I moved to rural CT, one town over from Lyme. Working at Pfizer in the early eighties we already had 2 employees affected. One with a chronic shoulder problem who’s mood oddly changed. Another employee’s wife had been at Yale for months. Yet in 1986 I knew nothing of the dangers of that wooded lot. Fast forward 30 years. Cancer and meningitis from IVIG at the same time really took me down. Of course this meningitis had no cause, it was sterile, aseptic. As a need tech this sounded absurd. My own research found mistakes all over and all each Dr’s trip was disastrous. I suffered a mental breakdown from the abusive treatment I was receiving. My new PCP took away my maintainance abx, a few more bits with no treatment and now I’m laying dying in my bed. I’m tired of this hell and to sick and terrified to seek out treatment I’m sure to be denied.
    I’m Sheryl and I have zero negative Lyme disease in addition to another group of uninvited guests. My vision is blurring so I’m done.
    Thank you for sharing your story, it was so similar to mine. I couldn’t believe that Dr’s I had known for years treated me like i had leprosy. Please excuse typos, I can’t see to correct. What a pitiful existence.

  2. Thank you for this remarkable post. I had Lyme disease about 10-11 years ago. Classic bullseye rash, and a treatment of antibiotics for 3 weeks (if I remember correctly). I was told catching it early was key, so I felt lucky.

    I was never retested but assumed I was ok given my doctor was “well respected.”

    I have felt extremely fatigued and perpetually depressed for years which I attributed to life circumstances and being a “highly sensitive person.” I have an awful memory and am scattered, unable to get my life organized. Somehow I managed for 10 years to have a successful career in real estate, stealing time between appointments to nap when I wanted to be outside, taking a walk, doing anything “normal.” However, my time “off” has and continues to be spent sleeping and trying to find enough energy to take care of my families and client’s needs. Ashamed and embarrassed by my lack of energy, I do my best to put on a happy face when my kids and husband return from school and work. With so many people who have many challenges greater than mine, I don’t feel entitled to exhaustion.

    Last week my joints and neck were so stiff I couldn’t fake the pain. My knees filled with fluid and my neck was crackling with every turn. I have mild fever/sweats and itching. The nerves on one side of my face are excruciating. I’ve had singles in the past, but this feels like a different kind of pain (facial cranial, duller but intense). I feel spacier than ever, increasingly depressed with bouts of crying. I have NO bullseye rash. My current doctor suspects either Lyme or Bells Palsy, though my face has not drooped. Blood work has been taken, no results yet.

    I’ve decided to resign from my career (which is why I do not want to use my full name). The stress of it is too much for me.

    From the incredible compilations of research I’ve read by Tom Grier, I’m very concerned that I need to be seeing someone who understands the complexities of Lyme Disease. My doctor (internist) is lovely, but she doesn’t specialize in this disease.

    Any advice, help, and names of specialists would be welcome. I want my life back.

    Thank you in advance.

  3. Thank you for putting so succinctly what so many of us “Lymies” have lived.

    I am 38, and the mother of three little girls. I have been searching for an answer to my growing list of symptoms for 23 years since they began. I have seen countless doctors over the years with little to no help for my condition.

    Last fall out of desperation I went to a Naturopathic doctor that I had been referred to by an osteopath who had been trying to help me with my chronic neck, shoulder and back pain. She listened to my laundry list of symptoms, and she immediately suggested I get tested for Lyme Disease.

    I, of course, tested negative with the standard Elisa test. So she had me test through IGeneX, and it came back clearly positive. Like you, I was relieved to finally have a diagnosis. Little did I know how difficult this disease would be to treat.

    Since then, for the past 11 months I have been flying to CA for treatment by a Lyme-literate doc. My symptoms are slowly improving with aggressive treatment, and I am exceedingly grateful to my doctor for his help, and to the naturopath who was knowledgeable about Lyme disease, it’s symptoms, and how to pursue treatment.

    Unfortunately, my 6-year-old has been showing symptoms, and we just had her tested. She has Lyme disease from being in-utero. I am guessing that my 5-year-old and my 21-month-old are likely to have it as well.

    Thank you so much for putting your story out there! We need people like you who can still articulate well to advocate for all of us!!

  4. Whew. Here I am 25 years later, a totally debilitated nurse, 18 years to diagnosis. This Spring a case of Coxsackie virus that recurs when I do my favorite antibiotic Septra that makes me 30 % better by the third pill. Diagnosed with “not much”, fibromyalgia, Acute Diseminated Encephalomyelitis ( my favorite diagnosis), finally MS before going one day and saying, I think I might have Lyme disease”. Behold! I came back positive.

    Dozens of tick bites but the CDC said they were not particularly significant. Haven’t had a life in ten years, can hardly walk, but always trying something or other, (herbal at the moment) and occasionally hopeful. A couple of LLMDs who made me worse in bizarre ways- completely paralyzed me as well as causing me to lose my sense of smell completely for 3 months. In any case I can’t afford them. I have a lovely PA who will give me any antibiotic I want and can tolerate but I cant afford IV Rocephin… So I basically give up.

    Pain in levels really improved over the years but how can the ability to walk matter so much?…..My incredibly vital Mother got Lyme with a bull’s eye at 88 and it brought her down fast even with her 3 weeks of doxy.

  5. I’m furious, too!! Like many others, I was misdiagnosed for many years. Told I had chronic fatigue, arthritis and firbromyalgia. Finally diagnosed w/ lyme at age 65, by an integrative med doc (my hero!).
    Am in an online support group (MN): the worst story I’ve heard is the 40 yo F w/ a baby and a 3 yo, who went to ER w/ painful facial eruptions, said she had lyme. Told by angry doc that it WASN’T lyme, and she should see a psychiatrist! AND that she could not possibly have passed lyme in-utero to her kids (though they tested positive…).

    We know the US drug czars are in control of docs in our system. Questions is: does the White House know of the lyme travesty? If not, we need to start writing to them
    Maybe THEY can put a “bug” under CDC!.

  6. I am a master advanced certified nutritional microscopist in Milwaukee, WI, at GreenSquare Center for the Healing Arts. I place a single drop of blood from your fingertip under a microscope and display it onto a screen. I read the quality of the blood and determine how your everyday lifestyle choices affect the quality of the blood that determine your health. I identify red blood cells, white blood cells, bacteria, yeast/fungus and molds, along with acid crystals of all sizes, shapes, and colors. I also identify the state of imbalance of the blood, with respect to pH, the acid alkaline scale. The Nobel Prize was handed out to Dr. Otto Warburg in 1931 for his findings that, among others, bacteria can’t survive in an alkaline environment. That’s why our municipal water system is set at a pH of 7.3 – so they don’t have to contend with bacteria and fungus forming on the water pipes. They find it easier to “alkalize” the water at their end less expensive than having to deal with the build up of bacteria. This is the same idea we need to put into practice when considering our own health. By supporting the alkaline design of our amazing human organism, we can live a life without having to deal with bacteria, as our blood pH should be 7.365. When bacteria and fungus start forming in our internal pipes, it is costly and takes our health away. I would urge every one to see a certified nutritional microscopist and see for yourself, how your every day lifestyle choices are affecting the quality of your blood. Are you creating an environment that is growing bacteria or an environment in which healthy red blood cells are thriving? It has really made a difference in my own life, and for the almost 11,000 clients I’ve seen. Nutritional Microscopy is the least invasive, least toxic, least costly, and MOST informative Non-Medical health information you may ever receive, enabling you to view the consequences of your every day lifestyle choices at the cellular level in the quality of your blood. Monitoring the changes to your lifestyle choices (how you live, eat, think, breathe, actively move about and assist your amazing human organism) and correlating those changes with the quality of your blood can empower you to make informed choices that can lead to your optimum health and wellness. Nutritional Microscopy provides the evidence necessary to make those healthy, informed choices and does not diagnose, mitigate, treat, cure or prevent any disease of any kind. Nutritional Microscopy educates, demonstrates and motivates. It can also help you get your life back — like it did me!

    1. Hi Jeff, I actually kinda know you, through Kristin and you donating a live blood analysis for the Lyme Walk. If you want me to turn your message into a post I will. Just give me your permission.

      Lisa Hilton

  7. Hi, I have just been tested positive for Borrelia. I have been a so-called ME/CFS sufferer for 19yrs and now I am being told it has been Lyme all along.

    One year ago my 15yr old son was diagnosed with a brain tumor – low grade astrocytoma. Is there any evidence to show a link between Lyme and brain tumors?

    Thanks.

  8. I am so emotional right now I can barely type. I have lived it…well, I have survived so far, but this is not life. I am a mother of 6 who has spent the past 11 years too sick to work, to enjoy my family as I should, to have quality of life. I am amazed at your verbal presentation of what we all feel, and wish we could say but have lost our faculties beyond retaining of a 5th grader, or the memory of a 90 year old.

    Your truth has made me cry. For all of us who are not heard, by doctors or even family and friends anymore. The lost who sit on the shelf they place us on til’ someone takes note…like a long put away teddy bear from a childhood. The lump in my throat can be just one of the 50 or so symptoms that have kept me inhuman for so long, or it could be the reminder that I AM human. If only someone would listen. If only.

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