One of the really amazing things that came out of Lyme activism is the Lyme Quilt.
Made by a team of Lyme patients, the Lyme quilt has travelled around to different Lyme events. Each square is representing a Lyme patient, some for those struggling with Chronic Lyme Disease and some are a memorial to those who have been lost because of it.
The Lyme Quilt was started in 2014 as an effort to give the entire lyme disease community a voice in the fight for recognition, more research, better testing and treatment for lyme disease.
We would like to thank:
Nancie Brengle: Main quilt coordinator
Kenneth Poindexter: Main quilt coordinator
Tami Griffin: original concept
Angela Furlong: volunteer (non lymie btw) who sewed the first quilt
Melynda Suarez and Darlene Moser: volunteers (non lymie btw) who sewed the 2nd panel
Christina Murphy: has made countless memorial squares for those who have passed. Helps with printing and also traveling with the quilt
Valarie Murphy and Kaethe Mitchel: have graciously volumteered to help anyone who cant make a square of their own
Rory Hubert Kahn: joined us and doing green squares.
Kenneth Poindexter says:
“And more than any of us, credit needs to go to the houndreds of lymies who have contributed their squares to this ever growing masterpiece of art.”
“The quilt was entered into a fair and won first place in the causes category .
We plan on showcasing it at the offices of our LLMD’s in our down times.”
The quilt has travelled to the following events:
The Great Frederick Fair
- MayDay 2014, Arlington, VA
- IDWeek 2014, Philladelphia, PA
- Central Mass Lyme Conference, Worcester, MA
- MayDay 2015, Arlington, VA
- Lyme Conference 2015, Binghamton, NY
- Festival of Legonds, Camp Hill, NC
- Ticked Off Music Fest, Annapolis, MD
And many many more to come. We have plans to take it to an event in Canada as well as a Golf Fundraiser in MA later this summer. And trying to arrange for it to be somewhere for “Red Shoe Day” in May.
Note: Ken and Nancie have used their own money to fund this project and get it to all the Lyme events . If you would like to help them by donating you can CONTACT THEM HERE.
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Leave a comment below for the Lyme Quilt team. Let them know what the Lyme Quilt and all their hard work means to you!