4 thoughts on “Videos from the Boston Lyme Disease Guidelines Protest”

  1. I can’t thank all of you who were there enough! Thank you for standing up for those of us who couldn’t make it, who are too sick to stand up for ourselves. It’s very inspirational to watch these videos. It gives me hope that things will change!

  2. Thank you Lisa for the video’s, and anyone else, including Paul Mall who organized this protest. I was too ill to attend on that day, so sorry I missed it. You look like a powerful and formitable group with a very strong message…..they had to get the message. I was wondering what the IDSA people said to you guys, if you spoke to a few.

    Thank you, thank you for your time and commitment

    1. Thanks Roz, most of them came over to chat with us and were genuinely interested in what we were going through. Some seemed really interested in co-infections, one thought his wife might have Lyme, and another, Fish MD, yelled at us and told us we were crazy. But all in all, I think it was a huge success. A very positive venture for sure.

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