What It Is Like To Lose a Friend with from Suicide because of Lyme Disease

suilyme-300x268Please describe what it feels like when you turn on your computer to see we lost another lyme friend to suicide… 

Feel free to write a comment below in the comments section. 

  • Wishing she could have hung on a bit longer because she had just started treatment a few months before. I’m still crying. I’m crying for the pain she was in for so long and the pain she went through mentally. Lisa this is really great what your doing.
    I feel like that was something that I was faced with in the past and could possibly face in the future. I hurt for them. I know how desperate the pain makes you. Just since then I have learned to never carry out rash actions without regard to my future
  •  I cry… My heart cries. Because I know all too well exactly why…. Why must we keep suffering. Why. We all are suffering from this and it is so criminal what the CDC an IDSA are allowing to happen. We are dying and will unfortunately continue to die from this until something or someone does something to CHANGE this crucial epidemic
  • Sad and frustrated and I wonder how long it takes before we give up. Its so difficult for us to get through each day. My heart breaks and is scares me. I become afraid for all of us.
  • As the mother of a sick child, I think “Therefore but the grace of God go I”
  •  a piece of me goes with each one. It really does. Even if I didn’t know them personally, it really gets me , because I know the life they have lived, I know the suffering they’ve known, and my heart breaks.
  • It feels like another piece of my heart is being torn away. With all that we do to bring about awareness and change….it doesn’t seem good enough when we loss a part of our family (Lyme family).
  • i echo allison’s sentiments.
  •  devastated and hurt…I feel kind of small, insignificant, helpless in not being able to do more…..my prayers and heart go out to the loved ones and to all facing this battle
  •  one more with lyme chose not to live with pain and suffering anymore. God have mercy on us all
  • Dread and what is possible
  • Devastated. I’ve cried so many tears for people I’ve never even met in person but came to know through our online Lyme community. I feel so mad because their deaths could have been prevented. Their family and friends didn’t have to loose them! It’s an outcry we can’t get the medical care we need and have to suffer to the point that death seems like the best option.
  • Anger & Devastation…..will anyone listen?
  • I am totally devastated to the point I can’t function. It brings back my own brother’s suicide and makes me relive it each time. He was missing for over 12 hours before his body was found. I cry even when I don’t really know the person because I feel like a part of me dies with them. The hope I have to get well goes away and makes me want to die even more. Losing these people is like losing a loved one each and every time. I have suicidal thoughts daily and fight them because of the pain it caused me and my family when my brother gave up his fight with lyme. All we want is to get well and be able to do the things other people do in life instead of our only outing being for a doctor appt. if we are lucky enough to have a llmd who does believe us and doesn’t degrade us by telling us it is all in our heads or that we are not sick or that a round of medicine cured us. I feel mad at the government for allowing us to suffer and die because we can’t get the care we need. It makes me wish each of them could suffer like we do. God bless us all…hang in there and fight!
  •  Hopeless
  • Honestly, I wonder if I will make it or if I will succumb too
  • Breaks my heart. I have felt like doing the same thing myself more than once but to see other people doing it is a real eye opener.
  • Angry!!! At the useless medical systems, world wide…
  • There but for the grace of god goes me…
  • Thankful for the family I have. It is the sole reason I continue my fight! Sadden by those who do not have support from family and friends. I go to bed each night praying i wake up and then wishing I hadn’t. That is not a life for anyone! The CDC has plenty of blood on their hands!
  • When I see yet another dear and precious soul who choses to leave, I don’t feel judgement toward them or their decision, I understand completely as the pain is so unbearable at times, and when the toll of lost relationships and unfulfilled life purposes add up, the night is dark. It deepens my dedication to help work toward the answers. The emotional healing, the physical healing, and I believe this is all pointing to the need of healing of our world.
  • I have total compassion and think wow, I could be next! If I wasn’t so scared!!! Feeling of loneliness sucks especially when you’re dealing with Lyme!
  •  Sad that our medical community has let yet another person who is sick and in need of help down… so sick that they felt the only option was to take their life.. because they probably didn’t have much quality in the one they were trying to live…
  •  My heart is crushed over and over again. Understanding the pain and suffering all to well, and knowing I have no control is devastating. My pain turns to outrage, and an even stronger desire to fight for change, advocate, and be there for my fellow sufferers.
  •  Cure!!!
  • It is pure devastation. Its not humane to suffer like we do. If the CDC just recognizes that lyme disease and coinfections exist past 21 days, those who suffer could get the right treatment. Instead, some are denied treatment, and the suffering and pain is too much after years of handling this illness without any help. It is absolutely shocking and so painful to see other victims of this disease hang it up because they simply are not heard and can’t find treatment or a cure.
  • Heartbroken, because I can relate. Angry because the CDC, AMA and especially the damn IDSA don’t get it or see it.
  •  Pissed off at the CDC and the doctors who are cowards to make that change!
  • Scared, since it hits so close to home I know it could be me.
  • honestly i feel like the people who were at the top of the twin towers, jumping right in front of our eyes. absolutely devastating.
  • This is a medical disaster..
  • You hold on …I’m always here for you..
  •  My heart breaks but I can not judge their choice as the pain and despair caused by this disease is unbearable…
  •  Sad and that it didn’t have to happen.
  •  Sadness and understanding. Sadness because I know remission and treatment is possible. Understanding because I know the terrible pain, loss, desperation, loneliness, financial issues, and isolation.
  • Terribly sad.
  •  as if we all are not dying a little more each day we then have to see we lost another one who just couldn’t live with the pain anymore kills you just a little bit more that day then normal!
  •  Personally, I could never commit suicide. It hurts my heart to see anyone take their own life. Our life belongs to The Lord and He decides when the time is. I can and do understand how…when the pain gets so immense that it takes over everything and causes us not to think straight. The thought does cross your mind that you just want to die. But no matter what…we have to stay strong and never take our own life. What a waste..of life.
  •  So frustrated that we don’t have the research we need, the support we need and the lack of resources for people to get the medical help they need.
  • It’s sad, that I understand why they did it. It comes to a point when you feel like you can’t take anymore. When the pain, it gets to much, and the medical world either refuses to help us or tells us we are crazy, it makes me very angry.

Leave your comment down below.  Then click here to leave a comment on the “Lyme and Suicide” article on CNN. Tell CNN your feelings on Lyme Disease and losing our friends to this battle. http://ireport.cnn.com/docs/DOC-1037462

 

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