Here is a list of non profits and foundations that are run on donations. If someone asks you where they can donate to help with research or to raise awareness for Tick Borne Infections, you can just send them this list. If you have a foundation or non profit you would like added, please add it to the comments section. Thank you!
Lyme Organizations and Researchers
A Canadian Website and Forum for Lyme Disease
Dr Murakami Center For Lyme
The Dr. E. Murakami Centre for Lyme Research, Education and Assistance was founded by Dr. E. K. Murakami and operates as a not-for-profit Corporation. We hold charitable status as registered with the Canadian Government, thereby allowing us to issue charitable tax receipts. Dr. Murakami’s passion for providing effective and life-saving treatment plans to victims of Lyme disease has been the core of the Centre’s existence. His unending devotion to the wellness of all sufferers and his passion for bringing truth and justice to Canadians alike are the driving force behind the inception of the Centre. Our mission is simple. To provide unbiased, double blind, peer reviewed facts on Lyme and Co-Infections to those who need to know; doctors and patients alike. To educate the people in the Medical Community on research findings and facts surrounding Lyme and its co-infections. To offer support to sufferers and families of Lyme patients on an on-going basis, and most importantly, to work with governing bodies and assist in making permanent changes to ouLymeChat Forum.htmr existing protocols for the diagnosis and treatment plans for Lyme in Canada. Dr. Murakami would like this to be his lasting legacy; an organization that will continue the fight in his name, and funded by his efforts. The Society thanks you, on his behalf, for your support and belief in his efforts and his fight for Lyme in Canada.
Empire State Lyme Association
Our mission is advocacy, education of the public, education of health care professionals and Lyme and associated disease research. Empire State is based in Manorville, NY and is active in local, state, and national issues. There is a desperate need for public awareness of tick-borne illnesses.
Global Lyme and Invisible Illness Organization– This organization is a charity started by Karen Smith and Lisa Hilton. The goal is to bring Lyme awareness worldwide using different strategies such as billboard campaigns, and brochures in different languages. This organization is also the founder of projects such as Red Shoe Day to remember those we lost, and the Blanket Fort parties on holidays to make sure Lyme patients have support and not feel so all alone and to also send care packages to children who are ill or who’s parents are and can’t afford gifts. The goal is to also keep a record of events that happen globally such as the Worldwide Lyme Protest to help keep countries united.
ILADS is a nonprofit, international, multi-disciplinary medical society, dedicated to the diagnosis and appropriate treatment of Lyme and its associated diseases. ILADS promotes understanding of Lyme and its associated diseases through research and education and strongly supports physicians and other health care professionals dedicated to advancing the standard of care for Lyme and its associated diseases.
The Lyme Disease Association began as Lyme Disease Association of Central Jersey, Inc. (LDACJ) in 1992 and then became Lyme Disease Association of New Jersey, Inc. (LDANJ) in 1993. It was formed by several patients and doctors─ the Fordyce and Drulle Families were particularly instrumental ─who saw the need to organize and fund research and educate people. It had first a regional then state focus.
Lyme Aid We would like to introduce a new group called, Lyme Aid to you. This was started by Michael Rudy, the brother of a Lyme patient himself. He was inspired by his sister’s journey to reach out and help others going through the same journeys. Join the Lyme Aid Facebook Page
Lyme Aide– A group from Illinois that does huge rides for Lyme patients.
Lyme Aid 4Kids
The LymeAid 4 Kids (LA4K) fund began in 2004 and has helped children all over the U.S. and in Canada. Developed with the help of author Amy Tan, the fund is for children who do not have/receive insurance coverage for Lyme disease treatment for children and have economic difficulties. Donations can be made on-line to LDA help this LA4K fund as there are so many applicants, the fund does run out of money frequently.
Click Here to visit Lyme Aid 4Kids
Lyme Disease Coalition
”Our mission is to reduce the prevalence of Lyme Disease through Education, Prevention, and Research. Working together with other groups and organizations, as well as government entities, sharing in resources, to enhance and extend service to the community.”
Lyme Tap – The Lyme Test Access Program (Lyme-TAP) is a nationwide patient assistance program to provide assistance for initial Lyme-related lab tests to patients who demonstrate true financial need.
Proceeds fund research, awareness, and impoverished Lyme Warriors. Research funds are granted at every at every available chance. Allocation is decided by a selection process from our team. You can see and get involved in our awareness campaigns under our campaigns link above. Personal grants are selected by an impartial 3rd party.
Click Here to visit Lyme Warriors
LymeDisease.org is a non-profit corporation that is a central voice for Lyme patients across the nation through advocacy, education and research. Since 1989, LymeDisease.org (formerly CALDA) has been revolutionizing the Lyme disease arena in public policy, advocacy, and science. Our grassroots membership and state based on line network reach thousands, providing a powerful voice for patients across the country. We seek the hard truths, ask the tough questions, and are not afraid to rock the boat.
Lyme Support Network
The Lyme Support Network is a non-profit service organization dedicated to making a difference by building awareness of Lyme Disease within our community. Our primary goal is to serve as a support group for people with Lyme Disease and / or other tick-borne diseases. Our work also includes advocacy to help increase the level of knowledge and understanding of Lyme Disease among the general public and the medical community.
MaineLyme is a tax-exempt organization as defined under IRC §501(c)(3)
MaineLyme is a 501 C 3 organization whose mission is to decrease the prevalence of Lyme Disease and other tick-borne illnesses in the State of Maine through awareness, prevention, education and advocacy.
NorVect is a Nordic interest group, dedicated to building and sharing vital knowledge about vector-borne diseases – particularly in the fields of diagnostics and treatment – across our countries. In cooperation with authorities and other interest groups, we arrange knowledge-leading seminars, conferences, and events covering leading international research and insights on vector-borne diseases.bIn doing so, we strive to create a platform for continuous improvement, and for an open and constructive dialogue between patients, their families, health practitioners, authorities, and politicians alike. NorVect is founded and run solely by patients with the desire to make a difference. Focus on research, focus on dialogue, and focus on the patients are the cornerstones of our organization.
Public Health Alert
Public Health Alert (PHA) is a newspaper committed to researching and investigating Lyme Disease and other chronic illnesses in the United States. We have joined forces and informational resources with local and nation wide support group leaders. These groups include the chronic illnesses of Multiple Sclerosis (MS), Lou Gherig’s Disease (ALS), Lupus, Chronic Fatigue Syndrome (CFS), Fibromyalgia (FMS), and various other illnesses of unknown origins. Public Health Alert seeks to bring information and awareness about these illnesses to the public attention as well as a broad base of health and nutritional news. We seek to make sure that anyone struggling with these diseases has proper support emotionally, physically, spiritually, mentally, and medically. PHA is a free monthly newspaper. We function on the sale of advertising space and donations from the public. We have nationwide distribution.
Thomas Grier, M.S. Research: Thomas Grier is a well known researcher that is trying to prove the connection between Lyme disease and Dementia by his brain autopsies. Please Donate to his research here.
Tick Borne Disease Alliance
Formerly known as Turn The Corner, Dynamic, inclusive and passionate, the Tick-Borne Disease Alliance is dedicated to raising awareness, promoting advocacy and supporting initiatives to find a cure for tick-borne diseases, including Lyme.
Wisconsin Lyme Network
” Wisconsin Lyme Network is a statewide nonprofit organization whose mission is to raise awareness, provide education and support, and promote research for vector-borne illnesses to the patients, medical community and the general population in Wisconsin.”
Thomas Grier, M.S. See his work here.
Eva Sapi: See her work here.