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lyme in the news

October 2014 Lyme News, Articles, Events

Newspaper Articles After many years, the diagnosis was Lyme disease Star News Debbie Dorholt believes she had Lyme disease for about 15 years before finally getting diagnosed last year. Debbie Dorholt (left) and Sarah Holm. Her suspicions were raised in 2013, when she was camping with her kids. A man at the lodge told her he ... Lyme gets some federal …

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What The Mayday Philadelphia Protest Meant to Lyme Patients and Their Families

What The Mayday Philadelphia Protest Meant to Lyme Patients and Their Families

On October 10, 2014  Lyme patients, friends and family members gathered in Philadephia to do a candlelight vigil to honor those we have lost to Lyme and other tick borne illnesses. The next night on Octobber 11, 2014 they gathered again in front of the convention center in downtown Philadephia to protest against the Infectious Disease Society of America (IDSA) …

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A Message from Dr Horowitz on Congenital Lyme

A Message from Dr Horowitz on Congenital Lyme

From Dr Horrowitz: "I have had women who have had multiple miscarriages secondary to Lyme, where both the placenta and fetus showed evidence of infection. In this article in Scientific American.com, it discusses the risk of transmission of Lyme to the fetus. Other tick-borne infections, such as the relapsing fever spirochete, as well as Babesia and Bartonella can also be …

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Lyme is not just Lyme

Lyme is not just Lyme

Technically, Lyme disease is a spirochetal infection caused by Borrelia burgdorferi. But as more patients are becoming ill with Lyme disease, it has become an umbrella term for so much more. There is a community of us that have been ill for a very long time. Many of us have been diagnosed with things such as MS, Lupus, Anxiety Disorders, Chronic Fatigue Disorder, …

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Porphyria

Porphyria

According to Mayo Clinic: "Porphyria refers to a group of disorders that result from a buildup of natural chemicals that produce porphyrin in your body. Porphyrins are essential for the function of hemoglobin — a protein in your red blood cells that links to porphyrin, binds iron, and carries oxygen to your organs and tissue. High levels of porphyrins can …

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"Websites and Support Groups by State"

is an ongoing page that whatislyme.com just started. So we will be adding more information for each day to each state. Some states are not complete or started yet while others are full of great information! So keep checking back as we work on this! Hope it helps you all find the support you need.

lyme disease support groups and websites

Websites and Support Groups by State

Support groups by State Alabama Alabama Lyme Disease Association Alabama Lyme Association Non Profit (Facebook) Click Here to See List of Alabama Research, Articles, and Support Groups Arizona Arizona Lyme Disease Association California  LymeDisease.org California Lyme Awareness Nor Cal Chico Lyme Delaware Delaware Lyme Disease Facebook Group Florida Florida Lyme League Pam Beach County Lyme Florida Lyme Disease Association For …

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Lyme in Alabama

Lyme in Alabama

Alabama Support Groups/Websites Alabama Lyme Disease Association Alabama Lyme Association Non Profit (Facebook) Articles WSFA 12 special report: Lyme disease in Alabama - WSFA ... May 19, 2014 - In this WSFA 12 special report, we show you how Lyme disease could be a bigger problem in Alabama than most people think. Lyme Disease in the South - WTVY May …

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Lyme in Florida

Lyme in Florida

Websites and Support Groups FLDA Florida Lyme Disease Association http://www.flda.org/ Florida Lyme Friends (Facebook) Florida Panhandle Lyme Group (Facebook) Florida Lyme League Florida Lyme Association Palm Beach County Lyme (Facebook) Newspaper/Online Articles UNF Researchers make big Discovery about Lyme Disease Events Neighbors Light up their Block Green for Amy Worldwide Lyme Protest 2013 Worldwide Lyme Protest 2014 Research UNF Researchers …

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Lyme in New Jersey

Lyme in New Jersey

Support Groups/Websites Lyme Aware on New Jersey New Jersey Lyme Disease (Facebook)   News Articles Pesky ticks bring Lyme disease risk to all of NJ | NJ.com Apr 3, 2014 - Pesky ticks bring Lyme disease risk to all of NJ. nj-deer-tick-lyme-disease.JPG. A female deer tick seen under a University of Rhode Island .. New tick-borne disease found in New Jersey …

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Lyme in New York

Lyme in New York

Support Groups/Websites Empire State Lyme Disease Association http://www.empirestatelymediseaseassociation.org/ New York City Lyme Disease Group http://www.nyclymesupport.org/ New York Lyme Support (Facebook) New York Lyme Advocacy (Facebook) Newspaper Articles Campaign to battle Lyme disease mounts as Hamptons epidemic grows New York for Worldwide Lyme Awareness 2014 New York City Worldwide Lyme Rally 2013 with Dr Jones, Eva Sapi, and many great speakers …

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Aaron rodgers signed

Aaron Rodgers Auction by Lyme Aid

    Are you a Green Bay Packers or Aaron Rodgers Fan? If so, this awesome Aaron Rodgers signed 8 x 10 is going up for auction soon. Comes with a certificate proving it's authentic. Please join Lyme Aid Sports Memorabilia Fundraising for more details and to keep an eye out for this auction. The proceeds of this go to a Lyme patient …

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Donations Needed for the Stephen Seibert Legal Defense

Donations Needed for the Stephen Seibert Legal Defense

From Bea Seibert: "The sad reality is that simply because Steve had had chronic lyme for 12 years his physicians ignored 2 recent tickbites - 3.5 and 5 months prior to his hospitalization. On the day he died an outside lab found babesia on his blood smear which means he was a CDC reportable case - but the hospital never reported his babesiosis. Steve …

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Fundraiser for Robin Virginia

Fundraiser for Robin Virginia

Message from Bonnie: Fundraiser for Robin Virginia I am helping Robin Virginia sell LYME Awareness bracelets in order to raise money for her various healthcare needs. The silicone ones are a minimum suggested donation of $10 each and the elastic ones are a minimum suggested donation of $15 each. The silicone bracelets say, "Love Faith Hope." Please see pictures below. …

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Please Help Emma if you can!

Please Help Emma if you can!

I have now been sick nearly 9 years and feel I have lost those years and will never get them back .In 2011 I was diagnosed with Lyme disease and co infections .
Sadly the NHS do not believe this diagnosis instead they call what I have CFS or M.E
... See the whole story

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Please Help Fanta if you can.

Please Help Fanta if you can.

Please help Fanta out if you can. She is only 22 years old and has been sick for 18 years and has been on treatment for over 5 years on treatment, Her doctor thinks that long term IV is what is needed - See more at: http://www.youcaring.com/medical-fundraiser/please-help-fanta/244286?utm_source=widget#sthash.Pwdp4ROX.dpuf

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Got Lyme?

Got Lyme?

  Please help us to be able to afford our medicine and Dr. visits. Insurance doesn't cover care, we pay cash for everything. Dr. visits are $350 a month per person. It is $700 to become a patient. Our herbs are $100 a month for each herb (need at least seven herbs each month for one person).My IV supplies are expensive and …

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Elisabeth "Lis" Heininger

Elisabeth "Lis" Heininger

September 29, 2014 "If Elisabeth "Lis" Heininger could have left one last message before she died, her loved ones say it would likely have been "never give up." "She never gave up," said her husband, Andy Heininger of Corning. "She always kept going." Lis was a freshman in college when she was diagnosed with Multiple Sclerosis. Years later, she was …

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