A Mother’s View: Watching your Child Suffer from Lyme Disease

Cee Cee’s Experience

A message to other parents regarding her daughter’s experience with Lyme Disease.

“Today was hard for me as a mom. For those of you who know me and my family you know that my husband suffers horribly from an autoimmune disorder called Chronic Lyme. What you may not know is so does our oldest daughter.

I pray none of you had to witness what I had to today. Our oldest suffers horribly from joint pain, hearing loss, anxiety and migraines. Today her symptoms were so bad that when I came home from work she could barely get out of bed.

When I convinced her to take a shower she could barely take her clothes off because her joints and muscles hurt so bad. She was having tremors so badly that she could barely stand. When she finally made her way into the shower she fell. SHE FELL!!! Because her tremors were so bad, my 17 year old daughter fell in the shower like a 90 year old lady.

She was sobbing and crying and begging us to stop her pain. She was yelling out that she didn’t want to be sick anymore. It destroyed me. It rocked me to the core.

If you don’t know about Lyme, please educate yourself. Don’t be ignorant. Don’t think that what the CDC says about it is true. I have had too many friends and my family go through this awful disease. It’s painful. It’s expensive. It’s hard to treat and even if you are blessed enough to find a doctor who believes in Chronic Lyme or even treats it, the barriers of insurance, and being able to afford treatment are enormous.

Our child is a 17 year old girl who was coaching a basketball team of young girls two days ago. Today she couldn’t take a shower because she couldn’t stand. Please learn as much as you can. Don’t let this happen to you.”

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A Mom Shares her One Year Old Daughter’s Lyme Story

One thought on “A Mother’s View: Watching your Child Suffer from Lyme Disease”

  1. My 30 year old daughter has been fighting Lyme for years.
    We live on the East Coast – went to Lahey Clinic and they didn’t diagnose the disease.
    We went to NH to a clinic…..they didn’t either.
    Finally a HS teacher friend who had the disease told us what blood test to Pay for….insurance wouldn’t cover it and that $400 finally got our daughter headed towards answers.
    We have flown to Seattle 4xs a year to be seen @ the Sophia Clinic by Dr. Dietrich Klinghardt.
    His unorthodox mix of traditional medicine and herbal remedies have been miraculous.
    Expensive $50K a year out of pocket…..luckily we can pay for this…..
    But….our daughter is working, functioning, laughing and working through the co-infections of a disease that went undiagnosed for 10 years.
    It’s frightening to think of what Lyme Disease does to people. I think the CDC and Insurance Companies don’t want to recognize it because it is expensive to treat. Nancy Amherst MA

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