Lyme in New York | What is Lyme Disease?

Lyme Disease in New York

Here is a collection of links to events, research, legislation and Lyme Disease support groups in New York. If you know of something that should be added post it in the comments below, thank you!

Support Groups/Websites

Lyme Islander (Facebook)
Empire State Lyme Disease Association
Lyme WNY (Facebook Group)
New York City Lyme Disease Group
New York Lyme Support (Facebook)
New York Lyme Advocacy (Facebook)
Empire State Lyme Disease Association Of Onondaga County
Mission statement-
Empire State Lyme Disease Association of Onondaga County is a Lyme support group to inspire, educate, and empower those affected by the broad spectrum of Lyme disease and it’s coinfections through compassion, understanding, and acceptance. Information is available at our free monthly meetings, held every second Tuesday @ 7 pm located at Camillus Senior Center- 25 1st Street Camillus, NY 13031 (please park in the far right parking lot only) All are welcome!
Long Island Lyme (LILA)
has been running meetings since 1992 and still do monthly in Levittown LI-NY.
Mid-Hudson Lyme Disease Support Group
2nd Wed. of each month, 7:30 PM, First Presbyterian Church, Route 44, Pleasant Valley, NY 12569. Call Rachel 845/229-8925 or Pat 845/889-4242.
The Northern Dutchess Lyme Support Group
We meet the second Tuesday of every month from 7:00-9:00 pm at the Red Hook Community Center, 59 Fisk Street, Red Hook, NY. Facilitators are Lauren 845-758-8457 and Dawn 845-758-5807.
Lyme in Orang
1st Mon. of each month. Call Mike at 914/588-0370.
Ulster County Lyme Support
Meets 4th Wed. every month 7-8:30 pm, at Clinton Avenue United Methodist Church, 122 Clinton Avenue, Kingston, NY. For more info Call Rick at 845-616-5410 or Susie at 845-891-6760
New Paltz Lyme Disease Support Group
1st Monday of month at 7pm at St. Andrews Episcopal Church, 163 Main St, New Paltz (use rear entrance)12561. Call Cheryl at 845-255-6605.Lyme Support Workshop Series, New Paltz Community Center, Monthly ~ 3rd Wednesdays ~ 12pm-2pm ~ professional guest speakers teach specific approaches & wellness practices effective with chronic illness. Suggested donation $10* www.lymewellnessseries.com, Call Meredith at 845-901-2235
Lyme Support Group Ulster County
1st Thurs each month 6:30pm at MAMA in Stone Ridge call Dawn at 845-687-0307.
Lyme Disease Support Group
Rockland County, not currently meeting. Contact Nancy at 845-729-2831
Mountaintop Lyme Disease Support Group
1st Thursday of every month,6:30-8:30PM,Hunter Public Library, 7965 Main St, Hunter, NY contact Regina atmountaintoplyme@gmail.com
New York City Lyme Support Group
4th Wednesday and 4th Monday 7:00-8:30PM, Phillips Ambulatory Care Center of Beth Israel, 10 Union Square East btw 14th & 15th St., 2nd floor Conference Center. For information: www.nyclymesupport.org
Ridgefield Evening Lyme Disease Support Group
Meets 2nd Thursday each month 5-7 pm. 2nd Floor, Ridgefield Visiting Nurse Association office, 90 East Ridge Avenue, Ridgefield, CT 06877. More info email Jennifer @LymeConnection.org or call 203-241-2400.
Ridgefield Afternoon Lyme Disease Support Group
meets the 2nd Friday of the month, 1:30 – 3 pm, Ridgefield Visiting Nurse Association office, 90 East Ridge Avenue, Ridgefield, CT 06877. More info email Jennifer @LymeConnection.org or call 203-241-2400
Lyme Alliance of the Berkshires Support Group
3rd Thurs. of each month, 6-8:30 PM, Berkshire Atheneum (Pittsfield Library),1 Wendell Avenue, Pittsfield, MA, 2nd Floor Conference Room. Contact: berkshirelyme@yahoo.com Website: http://berkshirelyme.blogspot.com/
CNY Lyme Support
meets the first Sunday of each month at 2pm at the Sullivan Free Library in Chittenango. Contact CNYLS at CNYlyme@gmail.com, or by calling 315-687-6540
Rockland Lyme Teen Support Group
ages 13-22, meets the first Tuesday of each month 6-7:30pm at the Suffern Village Hall, Community Room, 61 Washington Ave, Suffern NY. Contact Christine Oleksy at rocklandlymeteens@gmail.com, or by calling 845-642-0400.
Long Island Lyme Association
2nd Thursday 7-10pm, 3601 Hempstead Turnpike, Levittown NY 11756 Contact Scott at LILA to make a reservation at email:lila@longislandlyme.com
Mohawk Valley LYME Support Group
Your LYME and Tick Borne Disease (TBD) information source,
for the Greater Mohawk Valley in Central – New York State,
established April 19, 2015
Cortland County Lyme Disease Support Group
Cortland, New York
Contact Info.:
lauriejtebbe@yahoo.com
607-849-3170 – home
607-745-3621 – cell
Southern Tier Lyme Support Group
meets the second Monday of the month from 5:00pm-7:00pm at the Town of Chenango Town Hall 1529 State Rte12 Binghamton, New York. Website: Southern Tier Lyme Support (www.southerntierlymesupport.org)
www.ahope4lyme.org or A Hope 4 Lyme Inc.
I was just recently asked to join the board of directors for Ahope4lyme as I do much for this group. This group supports the North Central counties of Pa. And the south central counties of NY.

ahope4lyme@yahoo.com

570-537-6616
Upstate New York Lyme disease association.
We meet ,the third Monday of each month at Naturetyme on Erie Blvd. in Syracuse Ny, 6:30pm.

Lyme Disease Statistics

Click Here to view the Tick Check Lyme Disease estimated cases vs the CDC map of confirmed cases.

Legislation

2015 Lyme disease legislation gaining traction
2015 Legislation — HR 789 — that G Read Full Article Here
2015 See NY Lyme Bill Updates Here
NYS Assembly passed NYS Senator Hannon’s S07854 Lyme bill.
S05520 Summary: Authorizes long term antibiotic treatment for certain patients with Lyme disease and provides that physicians shall not be subject to disciplinary action for such treatment.

New York Lyme Disease Awareness Items

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New York Lyme

One thought on “Lyme in New York”

Please add Long Island Lyme Association to your list of support groups, LILA has been running meetings since 1992 and still do monthly in Levittown LI-NY.