Marlene Ziehl Spies: Canadian Lyme Disease Activist


Each day of May for Lyme Awareness Month in 2015, would like to recognize someone in the Lyme community that has done something to try to help the Lyme community. There are several “unsung heroes” in our community and we would  like to just offer them a little recognition and make sure that their achievements and efforts don’t go  unnoticed.

Today we would like to recognize Marlene  Ziehl Spies!


Marlene has done a lot to promote Lyme awareness in Canada and was also involved in some of the global projects as well! She has blog that you can follow to find out what she has next in store.

Marlene’s Blog

Meerkat’s Hope

Marlene was the Canadian Coordinator for the Worldwide Lyme Protest 2013

Niagara Falls Turning Green for Lyme Awareness and Brampton Towers Lighting up Green

See More Pictures and Read more about this Here.

Brampton Lyme Walk
Marlene (left) at the Brampton Lyme Walk.


LymeSavers 5km Walk
Whitby, Ontario (
Heydenshore Kiwanis Park)

Marlene in front of the "Lyme Awareness Car" at the LymeSavers 5km Walk Whitby, Ontario
Marlene in front of the “Lyme Awareness Car” at the LymeSavers 5km Walk
Whitby, Ontario
Photo Credit: Lymesavers
Photo Credit: Lymesavers

Meeting today Member of Parliament, Kyle Seeback

See details about this meeting on Marlene’s Blog Here

John Sanderson, Marlene, MP Kyle Seeback, Rossana, and Kim
John Sanderson, Marlene, MP Kyle Seeback, Rossana, and Kim

Marlene’s Story

I am a Lymie, infected, tested, and originally treated in Ontario, until my doctor had to drop his patients.  I also have the co-infections called Babesia and Bartonella, and probably another one which hasn’t yet been diagnosed but which my current LLMD (Lyme literate doctor) thinks I might have.

My story starts 5 years ago. I was bitten in August 2007 while visiting friends near Picton, Ontario, but thought at the time that it was just a spider and popped some antihistamine. My health problems started after that, but it took three years, more than 2 dozen doctors and specialists, several (mis)diagnoses, heaps of medications, visits to ER and walk-in clinics before I happened to diagnose myself after talking to a friend with a Lyme daughter. I went into my old emails and found records of when and where the bite occurred and a steadily growing list of complaints since then. When transferred to a spreadsheet, it made for some strange bedtime reading.

Keep Reading Full Story Here

Thank you Marlene for all you have done and continue to do to help spread Lyme Disease Awareness!


2 thoughts on “Marlene Ziehl Spies: Canadian Lyme Disease Activist”

  1. congrats marlene; my you have been one busy lady!

    LOVE THE LYME CAR TOO; caught my attention promptly.

    looking forward to reading more on above links as time permits.


    bettyg, iowa activist

  2. Marlene
    I love what you’ve done to make a difference in your part of the world for the lyme community which I call lyme family. Love the lyme car, you are doing an awesome job there in Canada keep up the good work….

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