On May 10 & 11th, the United States held several protests to raise awareness for Lyme Disease. They were 1 in 30 countries to protest on this weekend for the Worldwide Lyme Disease Awareness Protest. There were so many events that we have not even counted yet as news is still coming in from different states that did them.

As the US coordinator, I have to thank each and every state coordinator and volunteer that helped make this event such a success. Each person was sick with tick-borne infections, but still pulled the strength together to put together an event in their state to help others. Thank you to all who pulled this together and thank you to all who showed up at these events. I know either job is hard when you feel like you can’t even get out of bed each morning. I can’t thank you enough.

Thank you to all the Lyme foundations who helped us too:

LDUC (Lyme Disease United Coalition)

thank you for collecting donations, and providing support to the WWLP so that we could get green light bulbs to pass out to people for the “Samantha’s green light project. Also for the supportive phone calls to help keep us moving along!

A special thanks to Judith Weeg.

http://www.lduc.org/

Public Health Alert

Thank you for printing two articles about the Worldwide Lyme Protest. We really appreciated that. Also thank you for providing your newspapers in general which are always full of great articles! We passed them out in Chicago to the public.

A special thanks to Laura Wild.

http://www.publichealthalert.org

Empire State Lyme

For your endless support in this Lyme Protest and for all the help promoting this event!

A special thanks to Eva, my friend.

http://www.empirestatelymediseaseassociation.org/

NatCapLyme

Thank you for helping promote and for any donations received.

A speical thanks to Monte Skall

http://www.natcaplyme.org/

LRA (Lyme Research Alliance)

Thanks for your generous donations and support!

http://www.lymeresearchalliance.org/support-group.html

TBDA (Tick-borne Disease Alliance)

Thank you for your generous donations!

http://tbdalliance.org/

LDA (Lyme Disease Association)

Thank you for the endless brochures you supplied each state to pass out at the rallies. They are great for educating the public and we appeciate you being so generous with them.

http://www.lymediseaseassociation.org

LymeDisease.org

Thank you for your wonderful articles about the Worldwide Lyme Disease Protest!

Special thanks to Dorothy Leland for giving some extra support to California!

Dr Kenneth Liegner

Thank you for being our official cheerleader! Thanks for all the work you did surrounding New York and getting the word out about this protest. (I think I finally spelled your name right. 😉 Your wondeful speech can be found here.

http://nyclymerally.blogspot.com/p/kenneth-leigner.html

Igenex

Thank you for providing all the tick kits you did for our WWLP. This is such a great way to promote prevention. Thank you for any donations to the WWLP also.

Clongen Labs

Thank you for your generous donations!

http://www.clongen.com/

http://www.igenex.com/Website/

I will add more to this list as names come rolling in from my state leaders. Again a big thank you to all who participated in any form in the US Worldwide Lyme Protest!

NYC LDSG

Thank you for all your help and support!

Lyme Support Network

Thanks for your neverending support of any projects I get us into. 😉

http://www.lymesupportnetwork.org/

Wisconsin Lyme Network

Thanks for your support in the WWLP and for helping out the Albany branch!

http://www.wisconsinlyme.net/

Lisa Hilton
US Coordinator

Here are the news clips and press that the US got from the Worldwide Lyme Protest

ABC Greenbay Wi
http://events.wbay.com/Worldwide_Lyme_Awareness_Event/205051629.html

CNN
http://ireport.cnn.com/docs/DOC-973150?hpt=us_bn3

Poughkeepsie Journal http://www.poughkeepsiejournal.com/article/20130505/NEWS01/305050094/Rallies-raise-awareness-Lyme-disease-challenge-CDC-treatment-guidelines

ABC Florida
http://www.weartv.com/news/features/top-stories/stories/lyme-disease-awareness-day-31585.shtml?wap=0&

Key Lyme Time raises awareness, funds (GALLERY)
http://www.crestviewbulletin.com/health/key-lyme-time-raises-awareness-funds-gallery-1.143292

Iowa
Duo raising awareness of Lyme diseasehttp://indianolarecordherald.desmoinesregister.com/article/20130515/INDIANOLA01/305160012/Duo-raising-awareness-Lyme-disease

Kansas
http://6lawrence.com/news/health/lawrence-5k-raises-awareness-for-lyme-disease/#.UZLE48m_F8w.facebook

Lake Geneva Regional
http://www.lakegenevanews.net/Articles-Lake-Geneva-News-i-2013-05-09-249719.114135-Local-woman-helps-coordinate-Lyme-protest.html

Utah
ANGELI VANLAANEN TALKS ABOUT HER FIGHT WITH LYME DISEASE

http://www.abc4.com/content/news/top_stories/story/Angeli-VanLaanen-talks-about-her-fight-with-Lyme/MmbKu0Wnh0C70IQFxLr0dQ.cspx

I picked one pic from each state but to see more Click on the State

Alabama
State Coordinator: Lynne Hatcher

Arizona
State Coordinator:Laurie Damsell

Protested Mayo Clinic Scottsdale Arizona Courtyard Scottsdale at Mayo Clinic Meeting Room

13444 East Shea Boulevard · Scottsdale, Arizona 85259 USA

on Friday, May 10 at 12:30pm – 3:00pm.

Click Here for More Pictures

http://worldwidelymediseaseprotestus.blogspot.com/2013/02/california-protest-details.html

Southern California
State Coordinators:
Caryn Brady
Sandi Bohle

Fri May 10th

Protested at UCLA Medical Center 11-2

Saturday May 11th

12-3 Santa Monica Pier Rally/Protest at the beginning of the pier

5pm Under Our Skin – Ocean Screening – 1401 Ocean Ave

Lyme patients gathered to support educating medical staff and the public about Lyme Disease. We supplied Lyme Diseaese Brochures, Tick Kits and other info to passerby or any medical staff that would like to come talk to us.

Yolanda Foster from, “Real Housewives of Beverly Hills” even showed up to show support by gathering with Lyme Patients and passing out Lyme Info.

Click Here For More Pictures

http://worldwidelymediseaseprotestus.blogspot.com/2013/02/california-worldwide-protest.html

yolanda — Erica from “The Loop” and Yolanda Foster from
“Real Housewives of Beverly Hills” gather with Lyme patients at the Santa Monica Pier Rally. Both also suffer from Lyme Disease.
Photo Credit: Sandi Bohle

Northern California
State Coordinator:
Mary Rushing

Where: Napa Valley Exposition 575 3rd Street, Napa, California 94559

When: May 11th, 10 am

What: Lyme Rally

Please tune into Dr Noa 21st Century Health Live for a panelist of Lyme Specialists on May 27th 7pm – 9 pm

To see more Pictures Visit

http://worldwidelymediseaseprotestus.blogspot.com/2013/03/worldwide-lyme-disease-awareness_18.html

Florida
Event #1
State Coordinators:
Allison Hoffmann, Connie Murray, Nikki Murray , Paul Mall

“Key Lyme Time: A Lyme Disease Awareness, Charity Fundraising & Family Fun Day Event”

When: May 11th, we are hosting from 12-6pm

Where: Old Spanish Trail Park in Crestview, FL.

Connie Murray, Nikki Murray

https://www.facebook.com/WorldwideLymeProtestCrestviewFL

Event #2

Contact: Allison Hoffmann at:

Email Contact: fivegreightkids@yahoo.com

Friday, May 10, 2013

11:00am until 2:00pm in EDT

We will be having a table at Fleaworld for World Wide May Day Awareness. We will have Lyme Disease Flags, Bracelets and literature to share.

Click for more details of the event here:

https://www.facebook.com/events/456112904467143/

Event #3

Worldwide Protest Siesta Key Beach 5-11-2013

Coordinator: Paul Mall

Click Here For More Pictures

http://worldwidelymediseaseprotestus.blogspot.com/2013/02/florida-joins-worldwide-protest.html

Georgia
State Coordinator:
Liz Schmitz

Visit our website at:

http://www.GeorgiaLymeDisease.org

And stay tuned to this page for updates.

Georgia Lyme Disease Association has digital billboards in key locations all over Atlanta this month to promote Lyme and Tick-Borne Disease Awareness. We thank CBS Outdoor for partnering with us in our efforts to prevent tick bites and educate the public and medical providers about tick-borne diseases because they can devastate people’s lives if not recognized and treated in time. May is Lyme Disease Awareness Month and May 10 & 11 are WORLDWIDE LYME DISEASE AWARENESS DAYS! Please help us spread the word and educate others!

For More Pictures Click Here

http://worldwidelymediseaseprotestus.blogspot.com/2013/04/georgia-joins-in-wwlp.html

Illinois
State Coordinator: Jim Berger
Chicago Protest Blog

Friday May 10th and Saturday, May 11th Protest

What: Peaceful Protest to bring about Lyme Disease Awareness

Where: Daley Center Plaza

When: May 10 & 11th

For More Pictures Click Here

http://worldwidelymediseaseprotestus.blogspot.com/2013/02/illinois-worldwide-lyme-disease.html

Indiana

Many individuals participated in spreading awareness by changing their light bulbs to green, wearing Lyme attire, and hanging up green ribbons.

For More Pictures Visit Here

http://worldwidelymediseaseprotestus.blogspot.com/2013/03/indiana-worldwide-lyme-disease.html

Photo Credit: Tasha Chapel

Iowa
State Coordinator:
Joni Comstock

Where: Des Moines Capitol Bldg (west garden of the State Capital grounds)

When: May 11, 2013 11:00am – 2:00pm

To see More Pictures Click Here

http://worldwidelymediseaseprotestus.blogspot.com/2013/02/iowa-worldwide-protest.html

Kansas
Kansas Tick-Borne Disease Advocates Website
http://kansaslymefightersinc.webs.com/
Kansas Tick-Borne Disease Advocates Facebook Page
https://www.facebook.com/KSTBDA

From Peggy,

“We had over 400 people from 7 am to 11:30 am. We give money to people in kansas to access medical testing and treatment…wish we could raise more money..this even raised about $5,000.”

“We had a timed USATF 5K (competitive), and a WALK, and a Wellness Festival. We also have Overholt Productions putting together a video for the Under Our Skin contest.”

“We had 18 cities and 7 States represented that day.”

For More Pictures Click Here

http://worldwidelymediseaseprotestus.blogspot.com/2013/05/kansas-in-worldwide-lyme-protest.html

Get ready!! Go!
Photo Credit: Jeanne Smith fromwww.SEEKCRUN.com

Kentucky

Kentucky had a Lyme Awareness Booth.

For more pictures please click here

http://worldwidelymediseaseprotestus.blogspot.com/2013/03/kentucky-worldwide-lyme-disease.html

Photo Credit: Vicki Petsy

Maine
State Coordinator: Shantiann Daya and Angele Rice

Maine held a couple events, one at This was May 4th Saturday at the Bath Farmer’s Market, one in Town City Plaza.

For More Pictures Go To
http://worldwidelymediseaseprotestus.blogspot.com/2013/03/maine.html

Maryland
State Coordinator:
Lindsay Hanna

What: Spin-A-Thon
Where: Big Vanilla Athletic Club Arnold/Severna Park
1209 Ritchie Highway,
Arnold, MD 21012
When: Friday May 10 at 5 pm- Saturday May 11 at 5 pm
Benefiting NatCapLyme!
Pictures coming.

Massachusetts
State Coordinator:
Kenneth Mercure and Cheryl Monahan

Lyme patients from several different countries and several different states all protested at Brewer Fountain at Boston Common on May 10 and 11th, joining in with several other countries and states across the world, for Lyme Disease Awareness.

To see more pictures click here

http://worldwidelymediseaseprotestus.blogspot.com/2013/03/massachusetts-worldwide-lyme-disease.html

Michigan

State Coordinator: Michelle McKinstry

Minnesota
State Coordinators:
Jessica Sundeen

What: Awareness Booth at Cabelas!
When: May 11
Where: Cabelas
20200 Rogers Dr Rogers, MN 5537

Lyme Info booth at Cabela’s in Minnesota

Montana

Individuals in Montana spread Lyme Disease Awareness by changing their front porch light bulbs to green and hanging up green ribbons.

To see more pictures click here

http://worldwidelymediseaseprotestus.blogspot.com/2013/05/montana-lights-up-for-lyme-awareness.html

Debbie Haskins-Basler lights her house up green in Montana

New Hampshire
State Coordinator:
Nancy Bourassa
info@LYME411.org

When: May 11th 3:00pm until 9:00pm in ET

Where: STATE HOUSE LAWN & CAPITOL PLAZA CONCORD, New Hampshire

Rally and Flash Mob Dance

For more pictures please visit:

http://worldwidelymediseaseprotestus.blogspot.com/2013/02/new-hampshire-worldwide-lyme-awareness.html

New York
NYC Event
State Coordinator:
Vanessa Holden

When: Fri, May 10, 12-4 pm

Where: Union Sq, NYC

Speakers:

Here’s our exciting speaker schedule for the NYC Worldwide Lyme Disease Awareness Rally on Fri. May 10, 2013!!!!!! Hope you’ll join us. thanks. please like and share….

Worldwide Lyme Disease Awareness Rally – May 10, 2013, NYC, Union Square, South Plaza: 12-4 pm

Programme:

12:00 Musical lead-in

12:30 Dr. Daniel J. Cameron – NY (past president ILADS, president 2013), Lyme and epidemiologic research

12:45 Dr. Eva Sapi – CT, University of New Haven, Dept of Biology and Environmental Science

1:00 Gerald T. Simons – NY, PA-C, works at the Morrison Center, NYC.

1:15 Dr. Charles Ray Jones – CT (ILADS, pediatrician who has treated 20,000 children in Europe, Australia, US, Canada, Mexico, S Africa, Pakistan, India, Singapore, China, Japan, N. Korea, S. Korea, Saudi Arabia etc.

1:30 Tracy Hans – NJ, LPC, ACS, Lyme literate Psychotherapist

1:45 Jeff Christiansen – NY, Fire Island four poster deer program

2:00 Jill Auerbach – NY, Hudson Valley Lyme Disease Association – tick prevention

2:15 Douglas Nadjari, Esq. – NY, who successfully counseled Dr. Liegner through the OPMC process

2:30 Meghan Harrison – PA, Lyme patient, recipient of TBDA Courage Award, 2013

2:45 Ariana Sierzputowski – NY, Lyme patient

3:00 Dr. Andrea Gaito – NJ (co-founder and former president ILADS, current Treasurer, ILADS) rheumatologist/internist

3:15 Dr. Kenneth B. Liegner – NY, internal medicine/critical care, treating Lyme since 1988

3:45 Musical finale

Pam Weintraub – NY, author “Cure Unknown” – book signin

Visit their website to see Dr Liegner’s speech and for more pictures!

http://nyclymerally.blogspot.com/

chrisa — Union Square NYC Worldwide Lyme Protest
Photo Credit: Chrysa Pikramenos-mylyme.org

Albany Event
State Coordinator:
Marty Linton Boden

Speakers

U.S. Congressman-Paul Tonko (NY-20th district)

Letter from U.S. Congressman Chris Gibson (NY-19th District) read by Steve Bulgar, District Director

Letter from NYS Senator Terry Gipson (41st District) read by Kathleen Kwacz, Director of Albany Operations

Steven J. Bock, MD, over 30 years of complementary and progressive medicine including the treatment of Lyme Disease and other tick-borne illnesses

Holly Ahern, MS, Professor of Microbiology (SUNY Adironack), science writer, researcher in Lyme Disease spirochete biology

Eric Rutulante- Administrator of Lymebites.com, Patient Advocate

Darlene McMahon-Director of Children’s Lyme Network

John McPherson, Nationally Symdicated Cartoonist, Creator of the “Close to Home” comic; Patient Advocate

Stephen Leslie, co-author with Holly Ahern of “Chronic Lyme’s Disease: The Secret Epidemic” and author of “Healed from Chronic Lyme’s Disease: My Journey”

Joanne Yepsen, Supervisor, Saratoga Springs, NY

Kristin Raucci, MA, High School Spanish Teacher, Insurance Reform Advocate

Allison Acettella, High School Senior, Young Adult Patient Advocate

For More Pictures Click Here

http://worldwidelymediseaseprotestus.blogspot.com/2013/04/nys-capitol-rally-for-worldwide-protest.html