Lyme Info for Newly Diagnosed Patients

Common Questions

Q: What is an LLMD?

An LLMD stands for (lyme literate MD) It is a dr who knows about Lyme Disease, particularly those who have been trained with the ILADS guidelines. LLND stands for Lyme Literate Naturopath

For LLMD/LLND Referral Click Here


Q: If I have Lyme why did I test negative?

Lyme tests are very inaccurate for several reasons. (Testing times limits, lowered immune system reaction, strains or species that the tests don’t test for)

Q: What do the bands on the Western Blot Stand For?

Understanding Lyme Tests- Western Blot bands

Q: What tests are there for Lyme?

Which tests are best?


Q: What are the symptoms of Lyme?

Co Infections?

Q: What does Co Infections mean?

Co infections are other diseases that ticks can pass to you.


Q: What treatments are there for Lyme Disease?

Sadly there is no one treatment that works for all patients. Some patients will have to be on treatment for a lifetime while others will respond to one of the treatments or a combinations of treatments listed under the following link.


Q: What is a herx reaction?

When Am I going to get better?

Each person is different. There is not one definite answer to this question. There is nothing definitive about Lyme and its treatments. You will likely have to try several different treatments to find one that works for you. There is no cure as of yet. But people go into remission. So just keep your hope and keep trying new things until you find “your thing” that works for you. There are several options such as antibiotics, homeopath,  rife, hyperbarics, ozone, stem cell, diet changes and many more. It will take a lot of experimenting with different treatments to find what works for you.


Q: Why don’t doctors want to treat Lyme?

The Controversy

Q: Why is Lyme Disease so controversial?

Tick Removal

Q: How Do I properly remove a tick?


Q: How quickly does it take for Lyme to be transmitted? My doctor told me the tick had to be attached for up to 72 hours.

Not true: Transmission can happen quicker.

Good Lyme Blog

Living Lyme

Assistance Programs

For help with Lyme testing or med costs please visit the following link.

Q.  What do these abbreviations mean?

abx= antibiotics

ART= Autonomic Response Testing

babs= babesia

bart = bartonella

Bb= Borrelia burgdorferi

BBB= blood brain barrier

bid= twice a day

bpm= beats per minute

CBC= complete blood count

CNS= central nervous system

co’s= co infections

CO= cannabis oil, sometimes coconut oil

duck= quack doctor

dx= diagnosis

EEG= electroencephalogram

ELISA= enzyme-linked immunosorbent assay

EM= erythema migrans

HBO= Hyperbaric Oxygen therapy

HBOT= Hyperbaric Oxygen therapy

herx= herxheimer reaction 

IC= Interstitial Cystitis

ID= infectious disease

IgE= Immunoglobulin E

IgG= Immunoglobulin G

IgM= Immunoglobulin M

IM= intramuscular

IV= intravenous

keets= spirochetes

LLMD= Lyme Literate Medical Doctor

Neuro= neurological

OCD= obsessive compulsive disorder

PA= physician assistant

PCR= polymerase chain reaction

POTS= postural orthostatic tachycardia syndrome

prn= as needed

RIFE= electro-conducted frequency machine therapy

RMSF= Rocky Mountain Spotted Fever

Rx= prescription

sc= subcutaneous (under skin)

SPECT Scan= Single Photon Emission Computed Tomography

sx= symptom

TBD= Tick Bourne Disease

TBI= tick borne illness

tid= three times a day

tx= treatment

UTI= urinary tract infection

WB= western blot

Support Groups

These groups are run by patient and you can post your questions and get feedback.

Lyme Books that will Help you Learn More

Lyme Documentaries

Promote Awareness and Support a Lyme Patient

5 thoughts on “Lyme Info for Newly Diagnosed Patients”

  1. lisa,

    great organized list above; thanks for continuing to EDUCATE everyone with all the wonderful resources you provide to our entire community.

    god bless you my wisc. friend,

    bettyg, iowa activist

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