Common Questions
Q: What is an LLMD?
An LLMD stands for (lyme literate MD) It is a dr who knows about Lyme Disease, particularly those who have been trained with the ILADS guidelines. LLND stands for Lyme Literate Naturopath
For LLMD/LLND Referral Click Here
Testing
Q: If I have Lyme why did I test negative?
Lyme tests are very inaccurate for several reasons. (Testing times limits, lowered immune system reaction, strains or species that the tests don’t test for)
- Understanding Lyme Tests
- Lyme Tests Flawed
- Dr Brenners Explanation for the Western Blot
- Critical Needs and Gaps in Understanding Prevention, Amelioration, and Resolution of Lyme and Other Tick-Borne Diseases: The Short-Term and Long-Term Outcomes: Workshop Report
Q: What do the bands on the Western Blot Stand For?
Understanding Lyme Tests- Western Blot bands
Q: What tests are there for Lyme?
Symptoms
Q: What are the symptoms of Lyme?
Co Infections?
Q: What does Co Infections mean?
Co infections are other diseases that ticks can pass to you.
Treatments
Q: What treatments are there for Lyme Disease?
Sadly there is no one treatment that works for all patients. Some patients will have to be on treatment for a lifetime while others will respond to one of the treatments or a combinations of treatments listed under the following link.
- Treatment Guidelines from ILADS (International Lyme and Associated Disease Association)
- From Dr Burrascano:
Here are the Ilads Lyme Disease Treatment Guidelineshttp://www.ilads.org/files/ILADS_Guidelines.pdf - Dr Buhner on Recent Tick Bites
Treating Lyme naturally.
http://buhnerhealinglyme.com/category/transmission/recent-bites/ - Click Here for List of Lyme Disease Protocols
- Lyme Disease Treatments, Protocols and Healing Aides
Herxing
Q: What is a herx reaction?
When Am I going to get better?
Each person is different. There is not one definite answer to this question. There is nothing definitive about Lyme and its treatments. You will likely have to try several different treatments to find one that works for you. There is no cure as of yet. But people go into remission. So just keep your hope and keep trying new things until you find “your thing” that works for you. There are several options such as antibiotics, homeopath, rife, hyperbarics, ozone, stem cell, diet changes and many more. It will take a lot of experimenting with different treatments to find what works for you.
Doctors
Q: Why don’t doctors want to treat Lyme?
The Controversy
Q: Why is Lyme Disease so controversial?
- CAMP A and CAMP B The Lyme Disease Controversy
- Plum Island, Lyme Disease And Operation Paperclip – A Deadly Triangle
- Why Doctors Can’t Acknowledge, Treat, or Cure Chronic Lyme
- What Chronic Disease Have You Been Labeled With?
- What is the real reason why the mycoplasma and lyme epidemics are being covered up?
- Watch Jesse Ventura’s youtube videos on ”The Conspiracy Theory on Plum Island”
Tick Removal
Q: How Do I properly remove a tick?
- How to remove a tick
- Tick Removal Charts and Pictures
- Where do I send the tick I pulled off for testing?
Transmission
Q: How quickly does it take for Lyme to be transmitted? My doctor told me the tick had to be attached for up to 72 hours.
Not true: Transmission can happen quicker.
- HARD SCIENCE ON LYME: Ticks can transmit infection the first day.
- Clinical evidence for rapid transmission of Lyme disease following a tickbite.
- The Debate about how quickly Lyme disease is transmitted.
Good Lyme Blog
Assistance Programs
For help with Lyme testing or med costs please visit the following link.
Q. What do these abbreviations mean?
abx= antibiotics
ART= Autonomic Response Testing
babs= babesia
bart = bartonella
Bb= Borrelia burgdorferi
BBB= blood brain barrier
bid= twice a day
bpm= beats per minute
CBC= complete blood count
CNS= central nervous system
co’s= co infections
CO= cannabis oil, sometimes coconut oil
duck= quack doctor
dx= diagnosis
EEG= electroencephalogram
ELISA= enzyme-linked immunosorbent assay
EM= erythema migrans
HBO= Hyperbaric Oxygen therapy
HBOT= Hyperbaric Oxygen therapy
herx= herxheimer reaction
IC= Interstitial Cystitis
ID= infectious disease
IgE= Immunoglobulin E
IgG= Immunoglobulin G
IgM= Immunoglobulin M
IM= intramuscular
IV= intravenous
keets= spirochetes
LLMD= Lyme Literate Medical Doctor
Neuro= neurological
OCD= obsessive compulsive disorder
PA= physician assistant
PCR= polymerase chain reaction
POTS= postural orthostatic tachycardia syndrome
prn= as needed
RIFE= electro-conducted frequency machine therapy
RMSF= Rocky Mountain Spotted Fever
Rx= prescription
sc= subcutaneous (under skin)
SPECT Scan= Single Photon Emission Computed Tomography
sx= symptom
TBD= Tick Bourne Disease
TBI= tick borne illness
tid= three times a day
tx= treatment
UTI= urinary tract infection
WB= western blot
Support Groups
These groups are run by patient and you can post your questions and get feedback.
- Support Groups by State
- Lyme Questions
A Facebook group where you can privately post Lyme questions without your family and friends seeing them.
https://www.facebook.com/groups/121919717946352/ - 24/7 Lyme Hotline
A support group on Facebook run by Lyme patients.
https://www.facebook.com/groups/204870786211189/
Thank you so much for your time & dedication to Lyme Awareness. 💚
You’re welcome Valerie.
This is awesome!!! Thank you for this!!!!
This is excellent info! Thank you for sharing…I am sharing on my awareness page!
lisa,
great organized list above; thanks for continuing to EDUCATE everyone with all the wonderful resources you provide to our entire community.
god bless you my wisc. friend,
bettyg, iowa activist