“Who Will Be The Heroes of Lyme Disease, Who will be the Villains?”
by Tom Grier
The first camp: started with the pioneers of Lyme Disease who in the beginning got everything wrong. (see blog # 1) These Lyme experts have maintained their position that two tiered testing is dependable and indisputable, they maintain that even in severe cases of late Lyme that a few weeks of antibiotics is adequate, and with the support of the ACP (the American College of Physicians) patients that relapse after antibiotic treatment should be referred to a psychiatrist for evaluation. The ACP Lyme disease training video for physicians is quite clear on this and uses actors to reenact scenarios where Lyme patients are dismissed as psychosomatics and misinformed.
The other camp: looks at evidence like autopsies, pathology, stained tissue biopsies and bacterial cultures of blood, tissue, and spinal fluid. Using these methods of investigation they have determined that the medical sciences that they endorse have shown that antibiotics often fail to eradicate the infection, that autopsies have revealed the infection within the human brain and brain cells, and that Lyme disease serology tests are often negative when direct methods of testing show clear indication of active persistent infection.
Over the years I have heard of many such stories of charts being changed, tests being altered, and patients being lied to. I asked myself many times: Why don’t the people who know what is really going on like nurses, and lab people come forward and expose the truth? I suppose this is a common fantasy and day-dream among Lyme patients, and unfortunately it is unlikely people will risk their jobs to tell the truth.
Over the years I have spoken with many Health Departments and have been puzzled why no Health Department has ever made a serious attempt to study Lyme disease. If just one single State Health Department designed a well thought out study that looked at brain autopsies of dementia patients, MS patients, and Lyme patients I believe we would have the evidence we need to put the issue of persistence and chronicity to rest. The consequence would be millions of dollars saved by the State paying for the disabled and patients in nursing homes.
Whichever state takes point on this; that state will be recognized as a leader and as a hero to millions world-wide.
It is inevitable that such a study will happen. My home state of Minnesota could be the state that wins this race for truth if only they had vision, leadership and integrity from within. But most of all the workers of our health department must reevaluate their commitment to Minnesotan’s health, and not to politics and tourism. I am sorry to say that today’s medical bureaucrats are either cowardly or severely ignorant of the epidemic of M.S. in this country and the connection it has to Borreliosis and have done little to get to the bottom of the MS epidemic!
As for our Lyme experts that have gained fame and fortune from allowing Lyme patients to suffer without putting their own bad science to the test: These individuals must know by now that to gain these things at the expense of patient’s health and quality of life, that they have become villains and frauds and should be treated as such.
Perhaps this is why they refuse to see and accept the ample scientific medical evidence of persistent infection post-treatment. The so called Lyme-experts will not look at nor support pathology and autopsies that is better science than their stated opinions of non persistence? They refuse to support pathology and autopsy studies because it proves that they are the villains.
Maybe they are the ones who need psychiatrists for refusing to accept themselves as the bad guys. It is sad that many doctors become doctors because they like being heroes: How ironic that so many who would be heroes have become the villain.