Well this is it! This weekend, May 10 & May 11th, over 30 countries and over 20 states will be protesting, having rallies, walks, info booths, and UOS showing to help educate the public and medical societies that Chronic Lyme is very real and we are not going to stop until it is recognized!
Thousands of lime green ribbons have been put up, and thousands of porch lights have been turn to green for May, Lyme Awareness month. If you would like some ideas how to participate from home please visit: http://worldwidelymediseaseprotestus.blogspot.com/p/ribbons-across-america.html
http://worldwidelymediseaseprotest.blogspot.com/
http://worldwidelymediseaseprotestus.blogspot.com/
State Events List
1. Alabama
State Coordinator: Lynne Hatcher
Alabama won’t have a specific physical event on the same date as everyone else, they have scattered events happening :
Montgomery Gathering at the Riverfront – May 18th
http://worldwidelymediseaseprotestus.blogspot.com/2013/02/alabama-worldwide-lyme-disease.html
2. Arizona
State Coordinator: Laurie Fahey Email: Faheylaurie@gmail.com
Where: Mayo Clinic 13400 East Shea Blvd
(on the sidewalk of the Mayo Clinic)
When: Friday, May 10 at 12:30pm – 3:00pm.
What: We will be handing out educational info on Lyme Disease and other tick borne illnesses.We have brochures for physicians and the public.
Speakers:
Tina J. Garcia the founder of L.E.A.P will be speaking about “Is Lyme Disease In Arizona” at 3pm at the meeting room in the Marriott.
We will also have a Wellness Practioner speaking.
We will have fellowship and give aways. Come get some support and share your concerns.
We will supply Lyme Diseaese Brochures, Tick Kits and other info to passerby or any medical staff that would like to come talk to us
http://worldwidelymediseaseprotestus.blogspot.com/2013/02/california-protest-details.html
3. California (2 events)
Event 1 Southern California
State Coordinators:
Caryn Brady Email: caryn@pixequill.com Sandi Bohle Email: solasdesigns@gmail.com
When: Fri May 10th Protest at UCLA Medical Center 11-2
and Sat May 11th informational protest at SM Pier. (11-2 or 12-3)
Sat May 11th Late afternoon or evening – Free showing of UNDER OUR SKIN – Time & Location TBA as we are still looking for a venue that will donate the space & has a screen, video projector, & dvd player.
Lyme patients will be gathering to support educating medical staff and the public about Lyme Disease. We will supply Lyme Disease Brochures, Tick Kits and other info to passerby or any medical staff that would like to come talk to us.
http://worldwidelymediseaseprotestus.blogspot.com/2013/02/california-worldwide-protest.html
Event 2 Northern California
State Coordinator:
Mary Rushing
When: May 11th starting at 10 a.m. outside Napa Valley Expo
https://www.facebook.com/WorldwideLymeProtestNapa?fref=ts
4. Florida (2 Events)
Event #1
State Coordinator: Allison Hoffmann Email: fivegreightkids@yahoo.com
When: May 10th, 2013 10:30 – 12:30
What: Info Booth for Lyme Disease Awareness
http://worldwidelymediseaseprotestus.blogspot.com/2013/02/florida-joins-worldwide-protest.html
Event #2
State coordinators:
Connie Murray Email Contact: murrayc61@gmailcom
Nikki Murray Email Contact: (n.murray86@gmail.com)
“Key Lyme Time: A Lyme Disease Awareness, Charity Fundraising & Family Fun Day Event”
When: May 11th, we are hosting from 12-6pm
Where: Old Spanish Trail Park in Crestview, FL.
https://www.facebook.com/WorldwideLymeProtestCrestviewFL5. Georgia
For the 4th consecutive year, Georgia Lyme Disease Association (GALDA) has worked with the Georgia governor’s office to officially declare the month of May “Lyme and Tick-Borne Disease Awareness Month” across our state. This year is no different and we thank Georgia Governor Nathan Deal for urging citizens to educate themselves about tick-borne diseases (TBD) and their prevention. The Governor’s 2013 official proclamation has already been issued and will be presented in May.GALDA is planning media interviews and advertising to promote Lyme and Tick-Borne Disease Awareness Month during the month of May. We will focus on TBD prevention and education measures. As always, we offer free Lyme and Tickborne Disease brochures, which are also available online at our website for instant download at this link:http://georgialymedisease.org/yahoo_site_admin/assets/docs/galda_brochure_finished_prod_91611.263193655.pdfAdditionally, we will host a potluck picnic for patients and their family members. All are invited. Date/location to be announced. We hope to again share our “Georgia Faces of Lyme” video at this event.For more information contact GALDA at: info@GeorgiaLymeDisease.org
6. Illinois
Illinois Coordinator: Jim Berger Email: bjimbest@aol.com
What: Peaceful Protest to bring about Lyme Disease Awareness
Where: Daley Center Plaza & Tribune Towers
When: May 10 & 11th
Please stop by the Chicago Website for more details!
http://chicagolymeprotest.blogspot.com/
7. Iowa
Iowa State Coordinator: Joni Comstock Email: jonib2006@hotmail.com
Where: Des Moines Capitol Bldg (west garden of the State Capital grounds)
When: May 11, 2013 11:00am – 2:00pm
http://worldwidelymediseaseprotestus.blogspot.com/2013/02/iowa-worldwide-protest.html
8. Kansas
Kansas Tick Borne Disease Advocates
What: Lyme Walk
When: May 11, 2013, 10 AM
Where: South Park 1041 Mass. St, Lawrence, KS
Will have “The Traveling Lyme Flags”
http://kansaslymefighters.webs.com/walk
9. Maine
State Coordinator: Angele Rice
When: May 10th and 11th.
Event # 1 Awareness table at the Bath Farmer’s Market in Maine May 4th and May 11th
Event # 2 Protest by Tim Hortons and Super Cuts on Wilson&State street. 530 pm May 10th. Please make Bright Lyme Signs. Wear Lyme Green!
http://worldwidelymediseaseprotestus.blogspot.com/2013/03/maine.html
10. Maryland
State Coordinator: Lindsay Hanna Email: lndshanna89@gmail.com
What: Spin-A-Thon
Where: Big Vanilla Athletic Club Arnold/Severna Park
1209 Ritchie Highway,
Arnold, MD 21012
When: Friday May 10 at 5 pm- Saturday May 11 at 5 pm
Benefiting NatCapLyme!
http://worldwidelymediseaseprotestus.blogspot.com/2013/02/and-maryland-makes-20.html
11. Massachusetts
State Coordinator: Kenneth Mercure Email: thelymelife@yahoo.com
Where: Brewer Fountain at Boston Common
When: Friday, May 10th, 11am – 3pm
What: Lyme Rally
12. Minnesota (2 Events)
Event # 1
State Coordinators:
Angela Castle Email: angela4507@hotmail.com
Shaunna Oltman
What: Lyme Awareness Picnic
When: May 11 at 2pm
Where: Riverside Park 100 North 1st Street, Grand Forks, ND 58203
Event #2
State Coordinator: Jessica Sundeen Email: sundeenjessica@gmail.com
What: Awareness Booth
When: May 11
Where: Cabelas 20200 Rogers Dr Rogers, MN 55374
13. New Hampshire
State Coordinator: Nancy Bourassa Email: info@LYME411.org
When: May 11th 3:00pm until 9:00pm in ET
Where: STATE HOUSE LAWN & CAPITOL PLAZA CONCORD, New Hampshire
Large rally with multiple events happening all day.
14. New York ( 2 Events)
Event # 1 NYC Event
State Coordinator: Vanessa Holden Email: vfholden@vfholden.com
When: Fri, May 10, 12-4 pm
Where: Union Sq, NYC
Speakers at the Event
Practitioners / Physicians
Dr. Daniel J. Cameron – NY (past president and co-founder ILADS, president 2013), lyme and epidemiologic research
Dr Kenneth B. Liegner – NY, internal medicine/critical care, treating lyme since 1988
Dr. Andrea Gaito – NJ (former president ILADS, current Treasurer, ILADS) rheumatologist/internist
Dr. Charles Ray Jones – CT (ILADS, pediatrician who has treated 20,000 children in Europe, Australia, US, Canada, Mexico, S Africa, Pakistan, India, Singapore, China, Japan, N. Korea, S. Korea, Saudi Arabia etc.
Dr. Eva Sapi – CT – University of New Haven, Dept of Biology and Environmental Science, tick-borne disease research
Tracy A. Hans – NJ, LPC, ACS, Therapeutic Alliance Group, lyme literate Psychotherapist
Gerald T. Simons – NY, PA-C, works at the Morrison Center, NYC.
Other speakers:
Douglas Nadjari, Esq. – NY, who successfully counseled Dr. Liegner through the OPMC process
Jill Auerbach – NY, Hudson Valley Lyme Disease Association – tick prevention
Jeff Christiansen – Fire Island four poster deer program
Evan White – Advocate/attorney/former patient
Anonymous children – lyme patients
Pam Weintraub – author “Cure Unknown” – book signing
http://nyclymerally.blogspot.com/
Event # 2
Albany Event
State Coordinator: Marty Linton Boden Email: martycanfly@gmail.com
What: Lyme Rally
When: May 10 at 11:00
Where: NYS Capitol in Albany
Speakers
U.S. Congressman-Paul Tonko (NY-20th district)
Letter from U.S. Congressman Chris Gibson (NY-19th District) read by Steve Bulgar, District Director
Steven J. Bock, MD, over 30 years of complementary and progressive medicine including the treatment of Lyme Disease and other tick-borne illnesses
Holly Ahern, MS, Professor of Microbiology (SUNY Adironack), science writer, researcher in Lyme Disease spirochete biology
Darlene McMahon-Director of Children’s Lyme Network
John McPherson, Nationally Symdicated Cartoonist, Creator of the “Close to Home” comic; Patient Advocate
Kristin Raucci, MA, High School Spanish Teacher, Insurance Reform Advocate (denied treatment 9 times)
Allison Acettella, High School Senior, Young Adult Patient Advocate
15. North Carolina (2 Events)
State Coordinator: Beth Snyder Email: mylifeonlyme@gmail.com
2 Events will be going on in North Carolina!Event # 1
What: Lyme Disease Awareness Info Booth
When: 5/11
Where: Raleigh flea market (@ the NC State FairgroundsEvent # 2
When: May 10th, 11th & 12th
What: Lyme awareness booth
Where: Mayfest in Pilot Mountain (north of Winston Salem)
Girlscouts will be handing out hundreds of lyme awareness ribbons to give out, creating a kids tick awareness coloring activity sheet and doing some tick identfying and other activities with kids.More Mayfest info here: https://www.facebook.com/pages/Mayfest-in-Pilot-Mountain/119493174848893?ref=ts&fref=ts
16. South Dakota
State Coordinator: Kris Kuipers
Ribbons Across South Dakota and spreading awareness all over South Dakota
https://www.facebook.com/events/487262017995109/?fref=ts
17. Tennessee
State Coordinators:
Cat Kozich Email Contact: barefoot_and_butterflies@aol.com
Tabetha Greene Email Contact: Mareedp@gmail.com
Theme: Spreading the Word about Lyme Disease and turning your porch lights green!
Where: Throughout your state.
When: May 10 & 11
18. Texas
State Coordinator: Amie Pandolfo Contact Email: TXLymeDisease@hotmail.com
When: May 10 & 11, 2013
Where: Everywhere in Texas!
What: Wear Green and Pass out Lyme Brochures Fliers! Put a green ribbon on your mailbox and turn your porch light green!
19. Virginia
State Coordinator: Erin Doty Senger Email: erinedoty@yahoo.com
What: Blackburg Lights up for Lyme!
May 10 – Lyme Awareness get together at Virginia Tech Campus & Medical Community Outreach from 12-4
May 11th- Lyme Awareness peaceful march in downtown Blacskburg, library, Kent Square, Farmer’s Market, 1st & Main, outdoor hot spots (Huckleberry Trail, Pandapas, Heritage Trail) from 12-4p.
*Both days, we will meet up @ 12 noon (locations TBA) for photos & then spread awareness! Wear lime green! Bring your posters!
http://worldwidelymediseaseprotestus.blogspot.com/2013/03/virginia-joins-worldwide-lyme-disease.html
20. Wisconsin
State Coordinator: Jennifer Christie Email: jchristie000@ameritech.net
What: Worldwide Lyme awareness day rally, “Sit In” at park with Lyme Awareness Signs
When: Friday May 10th, 11:00 am – 3:00 pm
Where: Baird Place, Webster/East Mason Streets Green Bay, WI (SE corner of Webster and East Mason Streets.)
These states are working on a plan.
Ohio- Facebook Planning Page https://www.facebook.com/events/368345389946178/
New Jersey- https://www.facebook.com/events/135486896635014/?ref=ts&fref=ts
Pennsylvania- https://www.facebook.com/events/484085871655854/?fref=ts
What everyone can do from home
http://worldwidelymediseaseprotestus.blogspot.com/p/ribbons-across-america.html
Every state is encouraged to join the Worldwide Lyme Awareness Protest by doing the following:
Ribbons Across America Started several year ago by http://s-l-a-m.org/ every May Lyme Patients and their family and friends tie up Lime Green Ribbons to their doors, mailboxes or trees in their yard.
Samantha’s Green Light Project This is the second year where Lyme patients and their friends and family will change out their light bulbs on their porch for a green light for the month of May.
Petition Signings- http://worldwidelymediseaseprotestus.blogspot.com/p/active-petitions.html
Letter Writing Campaign- http://worldwidelymediseaseprotestus.blogspot.com/p/letter-writing-campaign.html
Twitter Campaign- Let’s fill up Twitter with Lyme Awareness Tweets on May 10th & May 11th!
Make sure whether you are part of a group or participating on your own, to send all your pictures from May 10 & May 11 to us to display on the Worldwide Protest Blog!
What other Countries are Doing
Queensland Australia is having several Lyme Awareness Events in different states also including: New South Wales, Australian Capital Territory, Victoria, South Australia, Western Australia, Northern Territory, Tasmania. Learn more about these events here:http://worldwidelymeprotestaustralia.weebly.com/index.html and keep up on the latest Lyme Disease updates in Australia here:http://worldwidelymeprotestaustralia.weebly.com/index.html.
Belgium will be doing online and written actions., Facebook posts and green awareness signs, but also working on a petition and letters.
Denmark Lyme patients are asking for a clinical diagnosis on Borreliose (Lyme), in Denmark – as long as no test is accurate, NO one should go home with the diagnosis of a syndrome, a psyhiatric label, or no diagnosis at all!
Les associations France Lyme (www.francelyme.fr) et Lyme sans Frontières (www.associationlymesansfrontieres.com) organisent un rassemblement national à Lyon, place Bellecour. Il a lieu le samedi 11 mai de 10h à 19h. Vous êtes libre de venir quand vous le souhaitez ! Nous distribuerons des tracts d’information aux passants. Renseignements :https://www.facebook.com/WWLymeProtestFrance?ref=hlThe organizations France Lyme (www.francelyme.fr/) and Lyme sans Frontières (www.associationlymesansfrontieres.com/) will organize a protest meeting in Lyon, Bellecour Place. It will occur on Saturday 11 May from 10am to 7pm. You are free to come whenever you want! We will give information tracts to the pedestrians. Information:https://www.facebook.com/WWLymeProtestFrance?ref=
Germany
“OnLyme-Aktion.org” will be coordinating Germany’s Lyme protest and have gained thousands of supporters and joint signatory for an open letter to the German health minister. This letter, including thousands of signatures, will be handed to our health authorities on May the 10th. We are going to invite the press to cover this hand-over.
Norway will have a demonstration outside of parliament the May 10th at 12 pm. Jordan Fisher Smith, from “Under our Skin” will be speaking at the Norway protest. Other guests that will be at the protest will be Lars Monsen and Erna Solberg.
protest will be held at Department of Health, in London on Friday 10th May, 2013. Please stop by their website for more details! http://worldwide-lyme-protest.org.uk/. Please stop by to sign their petition too.http://www.ipetitions.com/petition/uklymepetition/